Publications Index

Here you will find all the Publications that appear on our "Issues" pages indexed alphabetically and by topic.

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A

ABLEDATA Informed Consumer's Guide to Funding Assistive Technology - This guide discusses a broad range of potential sources of funding and funding information for assistive technology and provides lists of specific organizations and programs from which funding and funding information are available. The guide also discusses other sources of information on funding issues and organizations that assist people to find the funds that they need.

Abuse of People with Disabilities, Victims and Their Families Speak Out - This report by the Spectrum Institute Disability and Abuse Projectt is the first national survey of its kind that focuses on incidents of, responses to, and attitudes about abuse or crime victimization of children and adults with disabilities.

Access to Recreation provides an online catalog with a comprehensive selection of adaptive equipment and assistive devices designed to increase access to a variety of outdoor recreational experiences for people with disabilities.

Accessible Air Travel: A Guide for People with Disabilities - Information from the United Spinal Association about accessible air travel for people who use wheelchairs and other mobility aids.  Includes information about the Air Carrier Access Act, tips for transferring and lifting a passenger, security screening and procedures for filing complaints.

ADA Accessibilty Guidelines (ADAAG), the ADAAG contains scoping and technical requirements for accessibility to buildings and facilities by individuals with disabilities under the Americans with Disabilities Act (ADA) of 1990. These scoping and technical requirements are to be applied during the design, construction, and alteration of buildings and facilities covered by titles II and III of the ADA to the extent required by regulations issued by Federal agencies, including the Department of Justice and the Department of Transportation, under the ADA. (printable PDF version)

ADA National Network Disability Law Handbook - this handbook, written in FAQ format, is a guide to the basics of the Americans with Disabilities Act and other disability related laws.

ADA Questions and Answers. A 31-page booklet giving an overview of the ADA's requirements for ensuring equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation, and requiring the establishment of TDD/telephone relay services. (Spanish, Cambodian, Chinese, Hmong, Japanese, Korean, Laotian, Tagalog and Vietnamese editions available from the ADA Information Line.)

ADA: Know Your Rights Returning Service Members - This publication is designed to inform US military personnel who became disabled while on active duty of their rights under the ADA and provide information on where to go to get assistance.

ADA Paratransit Services: Demand Has Increased, but Little is Known about Compliance, November 2012 - this Government Accountability Office (GAO) report examines what public transit agencies are doing to address the growing demand for Paratransit services and provides recommendation on how to improve the collection of data to document how well paratransit services are being provided.

ADA Update: A Primer for Small Businesses is a new U.S. Department of Justice’s Civil Rights Division illustrated guide to help small business owners understand the new and updated requirements of the revised Americans with Disabilities Act (ADA) regulations that took effect on March 15, 2011.

Adapting Motor Vehicles For People With Disabilities: A Proven Process for Gaining Freedom on the Road - this brochure from the National Highway Traffic Safety Administration (NHTSA) is based on the experience of driver rehabilitation specialists and other professionals who work with individuals who require adaptive devices for their motor vehicles. It is centered around a proven process that can help you avoid costly mistakes when purchasing and modifying a vehicle with adaptive equipment. Also included is general information on cost savings, licensing requirements, and organizations to contact for help.

Additional Monitoring of Polling Places Could Further Improve Accessibility (GAO-09-9410), Sepember 2009 - This General Accountability Office (GAO) report is based on a national survey of polling places during the 2008 election assessing both physical and technological access. The report found that compared to 2000, the proportion of polling places without potential impediments increased and almost all polling places had an accessible voting system. However, 46 percent of polling places had an accessible voting system that could pose a challenge to certain voters with disabilities, such as voting stations that were not arranged to accommodate voters using wheelchairs. (Read highlights of the report)

2011 Alzheimer's Disease Facts and Figures is a report detailing the growing prevalence and escalating impact of Alzheimer’s and dementia on individuals, caregivers, families, government and the nation’s healthcare system.

The Annual Disability Statistics Compendium is a web-based tool that pools disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium will make finding and using disability statistics easier.

Annual Disability Status Reports, from Cornell University, provide policy makers, disability advocates, reporters, and the public with a summary of the most recent demographic and economic statistics on the non-institutionalized population with disabilities. They contain information on the population size and disability prevalence for various demographic subpopulations, as well as statistics related to employment, earnings, and household income. Comparisons are made to people without disabilities and across disability types. Disability Status Reports and other statistics are available for each state, DC, and Puerto Rico at www.DisabilityStatistics.org.

A Promising Start: Preliminary Analysis of Court Decisions Under the ADA Amendments Act, July 23, 2013 - This National Council on Disability (NCD) review of the court decisions that have been rendered to date applying the Americans with Disabilities Act Amendments Act of 2008 (ADAAA) reveals significant improvements in how courts are interpreting the broad coverage mandate of the Americans with Disabilities Act.

B

A Balancing Act: State Long-Term Care Reform Research Report, July 2008 - This AARP Public Policy Institute research paper examines the extent to which states have balanced the delivery of Medicaid-funded long-term care (LTC) services and supports to people in their homes (or in more home-like settings in their communities) and in institutions. What is unique about this report is its primary focus on older people and adults with physical disabilities separate from other LTC populations, such as people with developmental disabilities. The paper explores what states have been able to accomplish under current Medicaid law and addresses the impact that federal policies have on the states’ ability to balance service delivery.

NICHCY's Building the Legacy: A Training Curriculum on IDEA 2004 provides authoritative information about, and training materials on, IDEA and its final Part B regulations to help you become a better special education advocate.

C

The Case for Inclusion 2013 - Since 2006, United Cerebral Palsy (UCP) has produced this annual, state-by-state ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities (ID/DD). The Case for Inclusion ranks all 50 states and the District of Columbia (D.C.)-- not on their spending, but on their outcomes for Americans with ID/DD. This report shows how well each individual state is performing overall; how each state matches up against other states regarding key data measures; and, most importantly, the top performing states with policies and practices that should be replicated.

The Community Choice Act: A Vision for Attendant Services and Supports for the New Millennium is a brochure designed to assist advocates in promoting the Community Choice Act (S 683/HR 1670). The Community Choice Act (CCA) would give individuals who receive Medicaid and who are eligible for nursing facility services or other institutional care equal access to community-based services and supports. It includes background information, a summary of the legislation, answers to frequently asked questions and talking points on CCA.

Consumer Perspectives on Quality Home Care, September 2012 - This report by the National Consumer Voice for Quality Long-Term Care (Consumer Voice) seeks to understand quality care from a unique perspective; the individual receiving or accessing paid care services and support in their own home to determine how consumers define quality care, pinpoint needed care improvements and recommend policy actions to strengthen and provide more access to quality home care.

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

The Cost of Untreated Mental Illness in Greater Kansas City, Health Care Foundation of Greater Kansas City, February 2012 - Approximately one in every 10 adults in the Greater Kansas City area has a serious mental illness (SMI).Without treatment, SMI can lead to unemployment, increased hospital and emergency room use, incarceration, suicide, and early death due to chronic medical conditions. An economic model was developed by The HSM Group, Ltd. to quantify the costs of untreated SMI among adults. (Cost of Untreated Mental Illness in Kansas Factsheet)

The Cost of Waiting, April 2011 - A TASH report on restraint, seclusion and aversive procedures one year after the passage of the Keeping All Students Safe Act in the U.S. House of Representatives. This bill represented a monumental change in protections that would allow all children to learn in a safe environment. Unfortunately for thousands of children and families, this critical legislation never reached the Senate floor. The purpose of this report is to document the high cost of waiting to protect our children.

The Cost of Waiting, Second Edition 2012 - A TASH report on restraint, seclusion and aversive procedures two years after the passage of the Keeping All Students Safe Act in the U.S. House of Representatives. This bill represented a monumental change in protections that would allow all children to learn in a safe environment. Unfortunately for thousands of children and families, this critical legislation never reached the Senate floor. The second edition of the report has been revised to document the ongoing struggle to protect our children in schools across the country.

The Convention on the Rights of Persons with Disabilities (CRPD) is a human rights treaty that sets out the obligations of countries that ratify it to promote, protect, fulfill, and ensure the rights of persons with disabilities. The United Nations adopted the CRPD in 2006. As of May 9, 2011, 99 countries have ratified the treaty and 148 countries have signed it.  As of this writing, the U.S. has not ratified the CRPD.

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

D

Dangerous Use of Seclusion and Restraints in Schools Remains Widespread and Difficult to Remedy: A Review of Ten Cases, A U. S. Senate HELP Committee Majority Committee Staff Report, February 12, 2014 - This report documents 10 cases where students have experienced restraint or seclusion at school and concludes that widespread use of this practice is putting students with disabilities at risk and current laws offer families little recourse.

Diabetes and SCI is the first in a series of educational brochures by the Rehabilitation Research and Training Center on Spinal Cord Injury (RRTC on SCI)focused on specific health concerns and issues of long-term spinal cord injury survivors. This brochure is intended for spinal cord injury survivors living in the community to help maintain their health.

Disability Statistics Compendium, November 2012 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities. 2011 Disability Statistics Compendium (PDF)

Disaboom Adaptive Summer Sports Guide, Paddle, handcycle, flip and spin your way into a world of sunny adventure with the all-new Disaboom Adaptive Summer Sports Guide! Whether you're interested in a lazy raft trip on calm water or the whitewater thrill of a lifetime, no matter if you're a wheelchair user or simply have chronic pain, we've got resources for your adaptive sports experience. Horseback riding, surfing, tandem cycling ... on land or by water, you'll find it here.

DOJ Fact Sheet on 2010 Revised ADA Requirements for Service Animals - This publication provides guidance on the term "service animal" and the service animal provisions in the Department’s new regulations.

Do Noninstitutional Long-Term Care Services Reduce Medicaid Spending?, Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) - Medicaid spending on home and community-based services (HCBS) has grown dramatically in recent years, but little is known about what effect these alternatives to institutional services have on overall long-term care costs. This analysis of state spending data from 1995 to 2005 shows that for two distinct population groups receiving long-term care services, spending growth was greater for states offering limited noninstitutional services than for states with large, well-established noninstitutional programs. Expansion of HCBS appears to entail a short-term increase in spending, followed by a reduction in institutional spending and long-term cost savings.

The Disability Law Handbook from the DBTAC Southwest ADA Center provides information on rights and obligations under several federal disability laws, including an overview of the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act.

E

Easter Seals Siblings Study, November 2012 - How is life different for adults who have siblings with developmental disabilities, many who have assumed – or will assume – primary caregiving responsibilities for their brother or sister with disabilities? This Easter Seals study sheds light on the experiences of sibling caregivers as well as insight on the services and supports they need. (full report, pdf) (executive summary, pdf)

Equity in Transportation for People with Disabilities, May 2012 - as Congress debates reauthorization of the surface transportation bill, this report by the American Association of People with Disabilities and the Leadership Conference Education Fund offers recommendations on how to address the current inequity in affordable, reliable, accessible transportation for people with disabilities.

Employers’ Practical Guide to Reasonable Accommodation under the Americans with Disabilities Act. This publication from the U.S. Department of Labor's Job Accommodation Network (JAN) is a summary of some of the most frequent issues that employers have regarding accommodations and ADA compliance and JAN’s practical ideas for resolving them.

Estimating the Expense of a Mandatory Home and Community-Based Personal Assistance Services Benefit Under Medicaid; Mitchell P. LaPlante, PhD, H. Stephen Kaye, PhD, Charlene Harrington, PhD, University of California San Francisco - Personal assistance services (PAS) are essential for many people of all ages with significant disabilities, but these services are not always available to individuals at home or in the community, in large part due to a significant bias toward institutions in the Medicaid program. This study aims to provide an estimate of the expense of a mandatory personal assistance services (PAS) benefit under Medicaid for persons with low incomes, low assets, and significant disability.

Experience of Voters with Disabilities in the 2012 Election Cycle - This report examines the impact of the Help America Vote Act (HAVA) of 2002 by documenting the experiences of voters with disabilities during the 2012 general election cycle and offers concrete policy and procedural recommendations to improve voter participation and accessibility for citizens with disabilities now and in future elections.

F

Fair Housing Act Design Manual, US Department of Housing and Urban Development - This manual provides comprehensive information about accessibility requirements which must be incorporated into the design and construction of mutifamily housing covered by the Fair Housing Act. It is intended to provide clear and helpful guidance about ways to design and construct housing that complies with the accessiblity requirements of the Act.

Fair Housing Fact Sheets and Information - The Bazelon Center for Mental Health Law has created this series of factsheets to educate consumers with psychologica disabilities on their fair housing rights and to empower them as self advocates. However, the information is applicable to all individuals with disabilities seeking information on their fair housing rights.

Family Caregivers are Wired for Health by Susannah Fox, Maeve Duggan, Kristen Purcell, June 20, 2013 - This Pew Research Center survey finds the number of people caring for an adult or child with significant health issues is up from 30% of U.S. adults in 2010. The study finds that the activity of caregiving cuts across most demographic groups, but is especially prevalent among adults ages 30 to 64, a group traditionally still in the workforce. These caregivers are heavy technology users and are much more likely than other adults to take part in a wide range of health-related activities.

Food Insecurity Among Households With Working-Age Adults With Disabilities, USDA Economic Research Report Number 144, January 2013, by Alisha Coleman-Jensen & Mark Nord - This report examines the effects of disabilities on household food security using newly available data on disabilities among adults from the U.S. Census Bureau’s Current Population Survey. The research considers both adults who are unable to work due to their disabilities, and adults with disabilities that do not necessarily prevent employment. (report summary)

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Genworth Financial Long-Term Care National Survey: Key findings from a national survey of 800 likely voters, conducted August 14-16, 2007. - The survey found that nearly seven in ten Americans have not made any plans for their own, a spouse's or another relative's long term care needs. Yet, over half those surveyed have had a loved one who needed some form of long term care. The poll also found that close to 80 percent of the respondents want to see long term care included in the healthcare proposals offered by the presidential candidates. More than 80 percent of those surveyed also said that positions on long term care funding will be an important factor in deciding who to vote for in the 2008 election.

A Guide for People with Disabilities Seeking Employment. A 2-page pamphlet for people with disabilities providing a general explanation of the employment provisions of the ADA and how to file a complaint with the Equal Employment Opportunity Commission. (Spanish edition available from the ADA Information Line). Employment (HTML) | Employment (PDF)

Guide to the Americans with Disabilities Act (ADA) Standards and Guide to the Architectural Barriers Act (ABA) Standards - these new online guides fron the U. S. Access Board feature illustrated technical guides that explain and clarify requirements of the ADA and ABA standards, answer common questions, and offer best practice recommendations.

A Guide to Disability Rights Laws. A 21-page booklet that provides a brief overview of ten Federal laws that protect the rights of people with disabilities and provides information about the federal agencies to contact for more information. (Spanish, Cambodian, Chinese, Hmong, Japanese, Korean, Laotian, Tagalog and Vietnamese editions available from the ADA Information Line.)
Disability Rights Laws (HTML)
Disability Rights Laws (PDF)
Disability Rights Laws (En Español)

Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports - The principles presented in this document are the result of intense, honest, and detailed discussions among leaders from the disability and labor communities. They provide a framework for how disability advocates can work with labor unions and emerging worker organizations to advance people’s ability to direct and control their own services and supports while also improving workers’ wages, benefits, and working conditions. (Cover Letter, Word | PDF)

H

Helping People with Long-Term Health Care Needs: An Insurance Program to Help People Afford Long-Term Services and Supports -April 2010, A FamiliesUSA fact sheet on the CLASS Act.

The High Cost of Capping Federal Medicaid Funding, April 2011 - Deficit reduction commissions and some policymakers have recommended capping federal funding to some or all of the Medicaid program. This Fact Sheet examines the pros and cons of these proposed changes.

High Expectations: Transforming the American Workforce as the ADA Generation Comes of Age, US Senate HELP Committee Report, September 26, 2013 - This report examines the lives of the young people who make up the ADA Generation. This report shares their firsthand experiences in education, with disability benefit programs, with transition programs, and in the workforce. It includes a series of recommendations for bipartisan reforms intended to improve the programs that support the ADA Generation as they pursue their employment goals.

Testimony of Mitch LaPlante, Ph.D., Associate Professor, University of California,
San Francisco before the Senate Finance Committee Hearing on "Home and Community Based Care: Expanding Options for Long Term Care" Tuesday Sept 25th, 2007 at 10am, Dirksen Office Building G-50

Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality, University of California, San Francisco, Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). - The focus of this report is to examine issues of access, cost, and quality for Medicaid HCBS programs. The trends in state Medicaid HCBS programs, target groups, participants, and expenditures are summarized. The paper shows the progress in providing Medicaid HCBS but also identifies many current problems and policies. Inequities in access to services and limited funds result in unmet needs for HCBS. HCBS cost issues have been a primary focus of policy makers and quality problems are largely not addressed. Policy recommendations are made to improve access, costs and quality at the federal and state levels in the future. (report - pdf/html) (summary - pdf/html)

Home Use Devices: How to Prepare for and Handle Power Outages for Medical Devices that Require Electricity - As a home medical device user, it is important that your device works during a power outage and that you have a plan in place to ensure you know what to do. This completed booklet will help you have an established plan to obtain and organize your medical device information, take necessary actions so that you can continue to use your device, have the necessary supplies for the operation of your device, and know where to go or what to do during a power outage.

House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton
, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan.

How Safe Is The Schoolhouse? An Analysis of State Seclusion and Restraint Laws and Policies, By Jessica Butler, January 20, 2014 - this report describes and analyzes state restraint and seclusion statutes, regulations, and nonbinding guidelines, and includes maps and charts on the various issues.

HUD Notice on Service Animals and Assistance Animals for People with Disabilities in Housing and HUD-Funded Programs, April 25, 2013 - This notice explains certain obligations of housing providers covered by the FHAct, Section 504, and/or the ADA with respect to animals that provide assistance to individuals with disabilities.

I

ILRU Publications - ILRU has developed a variety of publications on independent living subjects, including a technical report series; monographs outlining the implications of health care reform for independent living; ADA resource materials available in both English and Spanish; directories of independent living centers and of independent living support materials; and handbooks providing background information on the independent living movement and on establishing and operating an independent living center.

Ill-Prepared: Health Care’s Barriers for People with Disabilities, November 2011 – This Equal Rights Center (ERC) report reveals that less than 25 percent of medical service providers they investigated were compliant with accessibility standards required under federal law.

Impairing Education: Corporal Punishment of Students with Disabilities in US Public Schools is a August 2009 report by the American Civil Liberties Union (ACLU) and Human Rights Watch which finds that students with disabilities are subject to corporal punishment at a disproportionately higher rate that other students in our public school system.

INCITEMENT is the quarterly newsletter of the grassroots disability rights organization ADAPT. ADAPT's main issue is ending the institutional bias in feredral long-term healthcare policy so that people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions. Toward that end they are vigorously advocating for the passage of the Community Choice Act.

Increasing Home Access: Designing for Visitability, Research Report, Jordana L. Maisel, IDEA Center; Eleanor Smith, Concrete Change; Edward Steinfeld, IDEA Center ; August 2008 - (report)(in brief) Visitability initiatives that support aging independently in one's home and community are the subject of this AARP Public Policy Institute Research Report. The authors discuss the barriers to visitability implementation and opportunities for further acceptance of these design parameters in the construction of new homes. Visitability is a movement that seeks to increase the supply of accessible housing through the inclusion of three basic structural features at the time of home construction: a zero-step entrance, wide doorways, and at least a half bath on the main floor of the home. (109 pages), Pub ID: 2008-14

The Intersection between Budget Cuts to Services and Civil Rights of People with Disabilities under the “Olmstead” Decision, Presented to: The House Committee on Long Term Care and Aging, Provided by:  Mike Oxford, Executive Director, Topeka Independent Living Resource Center, January 26, 2010 - This testimony presents a cogent argument regarding the necessity for systematic, comprehensive, long range planning to address the future long term care needs of our state that culminates in the development of an Olmstead Plan for the state of Kansas.

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JAN ADA Hot Links and Document Center links you to nearly every free publication on the ADA that is published by the federal government.

K

Kansas Accessibility Modification Program (KAMP) Factsheet (KAMP assists eligible persons with disabilities in making accessiblility modifications to their residence.)

Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.

L

Legislative Procedure in Kansas, Kansas Legislative Research Department, November 2006

Easter Seals Living with Disabilities Study provides insight into the challenges facing adults with developmental disabilities and parents of adult children with disabilities, as compared to parents of adult children without disabilities. In every measure of comparison, the study shows parents of adult children with disabilities had significantly higher levels of concern for their children than parents of adults without disabilities. (Key Findings of the study)

A Longitudinal Study of Playground Surfaces to Evaluate Accessibility: Final Report - this study evaluates a variety of playground surfaces, their costs, and their ability to meet accessibility requirements while documenting deficiencies that arise upon initial installation or those that might require maintenance after a 3-5 year period of use.

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Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth Transitioning to Adulthood, a guide designed by the Office of Disability Employment Policy (ODEP), U.S. Department of Labor, through its Youth Technical Assistance Center, to help transition-age youth with significant disabilities as well as their family and friends navigate the complex world of PAS.(pdf) (doc)

Medicaid, the Budget, and Deficit Reduction: The Threat Continues by Families USA, August 2011 - This policy paper explains the threat to Medicaid posed by the debt ceiling compromise and urges advocates to speak up about the importance of Medicaid and the dangers of cutting the program.

Medicare Atypical Antipsychotic Drug Claims for Elderly Nursing Home Residents, This report by the Depeartment of Health and Human Services (HHS) Office of the Inspector General (OIG) uncovers wide spread overuse and misuse of antipsychotic medications in our country's nursing facilities.

Medicare Beneficiaries Less Likely To Experience Cost- And Access-Related Problems Than Adults With Private Coverage, Karen Davis, Ph.D., Kristof Stremikis, M.P.P., M.P.H., Michelle M. Doty, Ph.D., and Mark A. Zezza, Ph.D., Health Affairs, July 18, 2012 - This recent survey found that Medicare beneficiaries age 65 and older are more satisfied with their health insurance, have better access to care, and are less likely to have problems paying medical bills than working-age adults who get insurance through employers or purchase coverage on their own.

Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit

Medicaid's Impact: Helping People with Serious Healthcare Needs - To get a sense of how important Medicaid is for people with serious health care needs, these reports look at  the number of individuals in each state with cancer, diabetes, chronic lung disease, or heart disease or stroke who rely on Medicaid for their health coverage.

Medicaid Managed Care for People with Disabilities: Policy and Implementation Considerations for State and Federal Policymakers, March 13, 2013 - This report by the National Council on Disability addresses the implications of managed health care and long-term supports for Medicaid-eligible people with disabilities to help readers gain a better understanding of the intricacies of Medicaid managed care practices and the ways in which these practices can and should affect services for program beneficiaries with disabilities. (PDF) (doc)

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

More Nonelderly Americans Face Problems Affording Prescription Drugs, Tracking Report No. 22, Laurie E. Felland, James D. Reschovsky - More children and working-age Americans are going without prescription drugs because of cost concerns, according to a new national study by the Center for Studying Health System Change (HSC). In 2007, one in seven Americans under age 65 reported not filling a prescription in the previous year because they couldn’t afford the medication, up from one in 10 in 2003. Rising prescription drug costs and less generous drug coverage likely contributed to the growth in nonelderly Americans—from 10.3 percent in 2003 to 13.9 percent in 2007—who went without a prescribed medication.

Moving Forward Together: A Workbook for Initiating and Increasing Accessible Taxi Services is designed for use by community leaders representing the taxi industry, disability community, transit industry, and local government, and is intended to facilitate discussion and encourage input from multiple perspectives as communities move forward to improve and increase the availability of accessible taxis. The workbook includes nine sections on important issues related to accessible taxi services, including public policy, vehicle design and costs, and contracts and operating agreements.  Each section includes a series of  discussion points that can be considered by a community and relevant examples of current efforts from communities across the country that have already put much work into improving accessible taxi services, along with contact information so workbook users can learn more about their experiences. Download as a PDF file  |  text file

My State’s Seclusion & Restraint Laws: Brief Summaries Of State Seclusion And Restraint Laws And Policies, By Jessica Butler, August 04, 2013 - This report summarizes key features of each state's restraint and seclusion laws and policies for school. Its primary purpose is to enable people in a state to learn their state rules. You may find more detailed information, including comparisons and analyses of state practices, and illustrative maps and comparison charts for all states, in How Safe Is The Schoolhouse? An Analysis of State Seclusion and Restraint Laws and Policies.

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The National Low Income Housing Coalition’s 2011 Advocates’ Guide to Housing and Community Development Policy is intended to provide advocates, policymakers, students, and others with information on the most relevant housing and housing-related programs and issues at the federal level, as well as information related to the community planning process. Each article provides basic information on a specific program or issue, and its current status. Where appropriate, advocates are provided talking points to assist in weighing in on particular topics. The appendices serve as a guide to the federal lawmaking and regulatory process and provide the kind of introductory information that can help anyone become an effective housing advocate.

Navigating College - This handbook by the Autistic Self Advocacy Network (ASAN) is a first-of-its-kind resource written by autistic adults for autistic college students exploring the various aspects of the higher education experience. From traditional topics like classroom accommodations and dorm life to hot-button issues such as disclosure and sexuality, Navigating College provides first-person insights from current and past college students on the autism spectrum. Along with the Navigating College handbook, ASAN has launched a dedicated website on autism and college issues: NavigatingCollege.org.

National Disability Policy: A Progress Report, October 2011 - in this report, the National Council on Disability (NCD) assesses the current state of people with disabilities in America and how emerging trends and government policies are impacting the quality of their lives. The report offers a broad range of recommendations for reforms designed to enhance the independence and self-sufficiency of people with disabilities.

Net Effects of the Affordable Care Act on State Budgets, This Urban Institute report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.

The New Horizons Booklet is a guide designed to offer travelers with disabilities a brief but authoritative source of information about the Air Carrier Access rules: the accommodations, facilities, and services that are now required to be available. It also describes features required by other regulations designed to make air travel more accessible.

NICHCY Fact Sheets on Specific Disabilities - NICHCY offers brief, but detailed fact sheets on specific disabilities. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with companion resources and disability organizations that offer more information and assistance.

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On the Verge: The Transformation of Long Term Services and Supports, by Mike Cheek, Martha Roherty, Leslie Finnan, Eunhee (Grace) Cho - National Association of States United for Aging and Disabilities, Jenna Walls, Kathleen Gifford - Health Management Associates, Wendy Fox-Grage, Kathleen Ujvari - AARP Public Policy Institute, February, 2012 - Many states are on the verge of transforming the financing and delivery of long-term services and supports (LTSS). On the heels of the Great Recession, state policymakers are looking at solutions that include moving toward capitated, risk-based managed care for Medicaid enrollees with LTSS needs and focusing on better care and cost containment for people who are dually eligible for both Medicare and Medicaid coverage, the so-called “dual eligibles.” This report presents the findings from a state survey conducted in the fall of 2011. State aging and disability agencies and Medicaid agencies responded with LTSS information on programs for older individuals and adults with physical disabilities. Forty-eight states and the District of Columbia responded to the survey. (report summary)

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A Parent's Guide to Response to Intervention (RTI) from Wrightslaw.com - created by Susan Bruce, Regional Education Coordinator for PRO*Parents of South Carolina, Inc., the Guide explains the RTI process and what IDEA requires, parent concerns and important questions about RTI, and what RTI means for our kids.

Power in Numbers: A Profile of American Voters with Disabilities - this first of its kind survey, by the National Youth Transitions Collaborative, examines the political impact of of people with disabilities, their families and caregivers. The results reveal information about the political views, advocacy trends and partisanship of people with disabilities.

A Practical Guide to Universal Home Design, This booklet by the Iowa Program for Assistive Technology, a program of the University of Iowa Hospitals and Clinics, Center for Disabilities and Development, Iowa’s University Center for Excellence on Disabilities is a room by room checklist you can use to help you consider your
options when incorporating the principles of universal design to increase the ease and flexibility of your home.

The Prepared Lifestyle is a free 12-page booklet that provides easy-to-use checklists to guide you in preparing for seasonal and pandemic flu, severe storms, and other emergencies. This publication is produced by the Research and Training Center on Independent Living at the University of Kansas and the Kansas Department of Health and Environment, Bureau of Health Preparedness, with funding from the U.S. Department of Health and Human Services.

Priced Out is a series of housing publications created as a joint effort by the Technical Assistance Collaborative, Inc. (TAC) and the Washington DC-based Consortium for Citizens with Disabilities (CCD) Housing Task Force. Priced Out is published every two years to bring attention to our nation's most compelling, and least understood, housing affordability crisis. Each edition of Priced Out helps measure the gap between HUD's Fair Market Rents and the incomes of individuals and families who rely on monthly SSI benefits. The goal of these biennial reports is to shed light on the housing crisis being faced by people with significant and long-term disabilities.

Priced Out in 2012 is a study of the severe housing affordability problems experienced by people with disabilities. Priced Out calculates the difference between what an individual receiving Supplemental Security Income (SSI) can reasonably afford to pay for housing costs and the average cost of modest housing units. Priced Out in 2012 confirms that non-elderly adults with disabilities living on SSI confront an enormous housing affordability gap across the entire nation.

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Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.

Restraint and Seclusion: Resource Document, The U.S. Department of Education, May 2012 - This publication outlines principles for educators, parents and other stakeholders to consider when developing or refining policies and procedures to support positive behavioral interventions and avoid the use of restraint and seclusion.

The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs.

Reasonable Accommodations Under the Fair Housing Act, Joint Statement of the Department of Housing and Urban Development and the Department of Justice, May 17, 2004 - This Statement provides technical assistance regarding the rights and obligations of persons with disabilities and housing providers under the Fair Housing Act relating to reasonable accommodations.

Reasonable Modifications Under the Fair Housing Act, Joint Statement of the Department of Housing and Urban Development and the Department of Justice, March 05, 2008 - detailed information, in a question-and-answer format, on the rights and obligations of persons with disabilities and housing providers under the Fair Housing Act relating to reasonable modifications.

Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children(pdf), September 27, 2012 - This report by the National Council on Disability explores the pervasive prejudices faced by parents with disabilities by exposing the disparate treatment often encountered by parents with disabilities and their children within court and service systems and offers draft model state and federal statutory language to correct the discrimination faced by parents with disabilities in the United States. (html) (docx)

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Segregated & Exploited: The Failure of the Disability Service System to Provide Quality Work, January 2011 - This National Disability Rights Network (NDRN) report identifies the barriers to employment that people with disabilities face and dispels myths about their capability to be fully employed, equally compensated, and an integral member of American workplaces and communities. It illustrates a systemic failure to provide hope and opportunity to young people with disabilities who want to transition into traditional work but instead wind up trapped in a sheltered workshop with little chance for something different.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

School is Not Supposed to Hurt: Investigative Report on Abusive Restraint and Seclusion in Schools by the National Disability Rights Network, January 2009 - identifies the abusive use of restraint or seclusion in our nation's schools, which has resulted in injury, trauma and death to children with disabilities. The report is divided into two sections. The first identifies the problems attributed to restraint or seclusion. It outlines the problems and details the proven risks to children associated with the use of these aversive techniques. The second section proposes solutions to the use of restraint or seclusion by highlighting the best practices in education and the use of positive behavioral supports.

School is Not Supposed to Hurt: Update on Progress in 2009 to Prevent and Reduce Restraint and Seclusion in Schools by the National Disability Rights Network, January 2010 - This is an update to the 2009 report. It represents the culmination of a year of intense advocacy work, family support, and initial action of lawmakers to regulate restraint and seclusion in schools.

School is Not Supposed to Hurt: The U.S. Department of Education Must Do More to Protect School Children from Restraint and Seclusion by the National Disability Rights Network, March 2012, This report is a follow-up to the original report from 2009 and the 2010 update that looked into the growing use of restraint and seclusion in our nation’s schools and called on federal, state, and local entities to make changes in order to protect our school children. This report criticizes the Education Department for failing to do more to rein in the use of restraint and seclusion in schools and offers recommendation ob how to address the problem.

Seclusion and Restraint: Selected Cases of Death and Abuse at Public and Private Schools and Treatment Centers, Statement of Gregory D. Kutz, Managing Director Forensic Audits and Special Investigations, May 19, 2009. United States Government Accountability Office (GAO) testimony before the House Committee on Education and Labor regarding the the use of restraints and seclusions on children and teens in public and private schools and selected treatment centers.

Section 504 FAQ - These questions and answers focus on the requirements of Section 504 of the Rehabilitation Act of 1973 that prohibit disability discrimination in programs receiving HUD funds or financial assistance.

Shouldn’t School Be Safe? - This TASH publication was developed by parents and for parents in response to repeated requests for a practical guide to keeping our school children safe from restraint, seclusion and other aversive practices. While this problem has been most acute among children with disabilities, it is an issue of school safety that has the potential to affect ALL students, directly or indirectly, and one that all parents should know and care about.

The Special Ed Advocate Newsletter is a free online newsletter about special education legal and advocacy topics. Subscribers learn about new cases, articles, seminars and training, special offers on books, and other useful information about special education law and advocacy.

The State of Housing in America in the 21st Century: A Disability Perspective, National Council on Disability (NCD), January 19, 2010 - This report provides a comprehensive overview of the state of housing for people with disabilities in the United States. It answers important questions about the current housing needs and options for people with disabilities and offers recommendations to improve housing opportunities.

State Mental Health Cuts: The National Crisis, March 2011 -this report documents the state-by-state funding changes for public mental health services since 2009 for youth and adults living with serious mental illness. These cuts are likely to worsen in 2011 and 2012. The report also describes how states have chosen to implement these funding cuts. The report concludes with policy recommendations, focused on the steps that should be taken to ensure that valuable public resources are spent wisely and effectively.

State Mental Health Cuts: The Continuing Crisis, November 2011- this report by the National Alliance on Mental Illness (NAMI) examines budgets approved for 2012 by state legislatures to document the nation's deepening mental health crisis. According to the report, Kansas ranked ninth amongst the top 10 states with the greatest proportion of cuts in mental health care from FY2009 to FY2012.

Stranded at the Station: The Impact of the Financial Crisis in Public Transportation is an August 2009 report by Transportation For America which offers a systematic analysis of the conundrum faced by communities and their transit systems: Historic ridership and levels of demand for service, coupled with the worst funding crisis in decades. The report documents the devastation of transit cuts and fare increases on America’s communities.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

Summary of Key Changes in Revised ADA Regulations - The Southeast ADA Center, one of ten regional resources in the DBTAC National Network of ADA Centers, has put together this summary of key changes about the revised and expanded regulations implementing the Americans with Disabilities Act (ADA) that took effect on March 15, 2011.

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Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective  / Research Report March 2009— This AARP Public Policy Institute Insight on the Issues highlights research showing, over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.

10-Plus Years After the Olmstead Ruling, By Eric Carlson and Gene Coffey
National Senior Citizens Law Center, September 2010 - A new report from the National Senior Citizens Law Center, with support from The SCAN Foundation, calls on states to use the implementation of the Affordable Care Act to end Medicaid’s long-standing bias toward funding long-term care in institutional settings such as nursing homes.

Thinking Outside the Farebox - this new free guidebook from Transportation for America is designed to help community leaders across the country meet the demand for transit by raising money to build and operate it outside of the traditional federal funding sources.

2014 - 2018 Kansas Consolidated Plan and 2014 Action Plan Comments by TILRC Executive Director Mike Oxford - The Consolidated Plan serves as the State's policy guide for publicly funded housing programs for low-to-moderate income persons and families (CDBG); very low and low-income households (HOME ); homeless individuals and families (ESG); and individuals and families living with HIV/AIDS (HOPWA).

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The United Nations Convention on the Rights of Persons with Disabilities is an international human rights instrument of the United Nations intended to protect the rights and dignity of persons with disabilities. Parties to the Convention are required to promote, protect, and ensure the full enjoyment of human rights by persons with disabilities and ensure that they enjoy full equality under the law.

The United We Ride National Dialogue Final Report, February 2010 (pdf / doc)-The Dialogue brought together key stakeholders using collaborative web-based technologies to discuss the following broad question: “What ideas can improve access to affordable and reliable transportation for people with disabilities, older adults, and people with limited incomes?”  The Dialogue participants highlighted important and challenging policy concerns for moving forward.  The themes, ideas, and Panel recommendations in this report identify significant opportunities to break down the Federal barriers to local coordination of Federal transportation resources and streamline access to transportation services for people with disabilities, older adults, and individuals with limited incomes.

Unfinished Business: Making Employment of People with Disabilities a National Priority, U.S. Senate HELP Committee, July 2012 - This report describes the dismal disability employment situation, points to some recent developments that create an historic opportunity to bring more workers with disabilities into the labor force, and calls on the leadership in Congress and the Administration, in the business community, and in society at large to elevate this issue to a national priority.

Unsafe In The Schoolhouse: Abuse Of Children With Disabilities, The Council of Parent Attorneys and Advocates, Inc.(COPAA), May 27, 2009 - This report details 180 incidents of the use of abusive interventions against children with disabilities in school. The report also includes suggested legislative remedies.

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Valuing the Invaluable: 2011 Update - The Growing Contributions and Costs of Family Caregiving by Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, AARP Public Policy Institute, July 2011 - This report updates national and individual state estimates of the economic value of family caregiving using the most current available data. The report also explains the contributions of family caregivers, details the costs and consequences of providing family care, and provides policy recommendations to better support caregiving families.

Voters with Disabilities: More Polling Places Had No Potential Impediments Than in 2000, but Challenges Remain, GAO-09-685, June 2009 - This report by the U.S. Government Accountability Office (GAO) finds that access for voters with disabilities has improved since the 2000 election, but many problems remain.

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Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).

2009 Worst Case Housing Needs of People with Disabilities - This U.S. Department of Housing and Urban Development (HUD) report summarizes efforts to measure the extent of "worst case housing needs" among very low-income renter households with disabilities. The report finds that approximately 1 million households that included nonelderly people with disabilities had worst case needs. Renter households that include nonelderly people with disabilities are more likely than those that don’t include people with disabilities to have very low incomes, experience worst case needs, pay more than one-half of their income for rents, and have other housing problems, such as living in inadequate or overcrowded housing.

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Publications by Topic

Benefits

The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

Disability Statistics Compendium, November 2012 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities. 2011 Disability Statistics Compendium (PDF)

Helping People with Long-Term Health Care Needs: An Insurance Program to Help People Afford Long-Term Services and Supports -April 2010, A FamiliesUSA fact sheet on the CLASS Act.

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

The High Cost of Capping Federal Medicaid Funding, April 2011 - Deficit reduction commissions and some policymakers have recommended capping federal funding to some or all of the Medicaid program. This Fact Sheet examines the pros and cons of these proposed changes.

House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton
, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan.

Ill-Prepared: Health Care’s Barriers for People with Disabilities, November 2011 – This Equal Rights Center (ERC) report reveals that less than 25 percent of medical service providers they investigated were compliant with accessibility standards required under federal law.

Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.

Medicaid, the Budget, and Deficit Reduction: The Threat Continues by Families USA, August 2011 - This policy paper explains the threat to Medicaid posed by the debt ceiling compromise and urges advocates to speak up about the importance of Medicaid and the dangers of cutting the program.

Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit

Net Effects of the Affordable Care Act on State Budgets, This Urban Institute report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.

On the Verge: The Transformation of Long Term Services and Supports, by Mike Cheek, Martha Roherty, Leslie Finnan, Eunhee (Grace) Cho - National Association of States United for Aging and Disabilities, Jenna Walls, Kathleen Gifford - Health Management Associates, Wendy Fox-Grage, Kathleen Ujvari - AARP Public Policy Institute, February, 2012 - Many states are on the verge of transforming the financing and delivery of long-term services and supports (LTSS). On the heels of the Great Recession, state policymakers are looking at solutions that include moving toward capitated, risk-based managed care for Medicaid enrollees with LTSS needs and focusing on better care and cost containment for people who are dually eligible for both Medicare and Medicaid coverage, the so-called “dual eligibles.” This report presents the findings from a state survey conducted in the fall of 2011. State aging and disability agencies and Medicaid agencies responded with LTSS information on programs for older individuals and adults with physical disabilities. Forty-eight states and the District of Columbia responded to the survey. (report summary)

Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

State Mental Health Cuts: The National Crisis, March 2011 -this report documents the state-by-state funding changes for public mental health services since 2009 for youth and adults living with serious mental illness. These cuts are likely to worsen in 2011 and 2012. The report also describes how states have chosen to implement these funding cuts. The report concludes with policy recommendations, focused on the steps that should be taken to ensure that valuable public resources are spent wisely and effectively.

State Mental Health Cuts: The Continuing Crisis, November 2011- this report by the National Alliance on Mental Illness (NAMI) examines budgets approved for 2012 by state legislatures to document the nation's deepening mental health crisis. According to the report, Kansas ranked ninth amongst the top 10 states with the greatest proportion of cuts in mental health care from FY2009 to FY2012.

Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).

Civil Rights

ADA Questions and Answers. A 31-page booklet giving an overview of the ADA's requirements for ensuring equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation, and requiring the establishment of TDD/telephone relay services. (Spanish, Cambodian, Chinese, Hmong, Japanese, Korean, Laotian, Tagalog and Vietnamese editions available from the ADA Information Line.)

ADA Update: A Primer for Small Businesses is a new U.S. Department of Justice’s Civil Rights Division illustrated guide to help small business owners understand the new and updated requirements of the revised Americans with Disabilities Act (ADA) regulations that took effect on March 15, 2011.

Dangerous Use of Seclusion and Restraints in Schools Remains Widespread and Difficult to Remedy: A Review of Ten Cases, A U. S. Senate HELP Committee Majority Committee Staff Report, February 12, 2014 - This report documents 10 cases where students have experienced restraint or seclusion at school and concludes that widespread use of this practice is putting students with disabilities at risk and current laws offer families little recourse.

Fair Housing Fact Sheets and Information - The Bazelon Center for Mental Health Law has created this series of factsheets to educate consumers with psyhcological disabilities on their fair housing rights and to empower them as self advocates. However, the information is applicable to all individuals with disabilities seeking information on their fair housing rights.

HUD Notice on Service Animals and Assistance Animals for People with Disabilities in Housing and HUD-Funded Programs, April 25, 2013 - This notice explains certain obligations of housing providers covered by the FHAct, Section 504, and/or the ADA with respect to animals that provide assistance to individuals with disabilities.

INCITEMENT is the quarterly newsletter of the grassroots disability rights organization ADAPT. ADAPT's main issue is ending the institutional bias in feredral long-term healthcare policy so that people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions. Toward that end they are vigorously advocating for the passage of the Community Choice Act.

Reasonable Accommodations Under the Fair Housing Act, Joint Statement of the Department of Housing and Urban Development and the Department of Justice, May 17, 2004 - This Statement provides technical assistance regarding the rights and obligations of persons with disabilities and housing providers under the Fair Housing Act relating to reasonable accommodations.

Reasonable Modifications Under the Fair Housing Act, Joint Statement of the Department of Housing and Urban Development and the Department of Justice, March 05, 2008 - detailed information, in a question-and-answer format, on the rights and obligations of persons with disabilities and housing providers under the Fair Housing Act relating to reasonable modifications.

Section 504 FAQ - These questions and answers focus on the requirements of Section 504 of the Rehabilitation Act of 1973 that prohibit disability discrimination in programs receiving HUD funds or financial assistance.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Summary of Key Changes in Revised ADA Regulations - The Southeast ADA Center, one of ten regional resources in the DBTAC National Network of ADA Centers, has put together this summary of key changes about the revised and expanded regulations implementing the Americans with Disabilities Act (ADA) that took effect on March 15, 2011.

10-Plus Years After the Olmstead Ruling, By Eric Carlson and Gene Coffey
National Senior Citizens Law Center, September 2010 - A new report from the National Senior Citizens Law Center, with support from The SCAN Foundation, calls on states to use the implementation of the Affordable Care Act to end Medicaid’s long-standing bias toward funding long-term care in institutional settings such as nursing homes.

Education

Employment

A Promising Start: Preliminary Analysis of Court Decisions Under the ADA Amendments Act, July 23, 2013 - This National Council on Disability (NCD) review of the court decisions that have been rendered to date applying the Americans with Disabilities Act Amendments Act of 2008 (ADAAA) reveals significant improvements in how courts are interpreting the broad coverage mandate of the Americans with Disabilities Act.

Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports - The principles presented in this document are the result of intense, honest, and detailed discussions among leaders from the disability and labor communities. They provide a framework for how disability advocates can work with labor unions and emerging worker organizations to advance people’s ability to direct and control their own services and supports while also improving workers’ wages, benefits, and working conditions. (Cover Letter, Word | PDF)

Disability Statistics Compendium, November 2012 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities. 2011 Disability Statistics Compendium (PDF)

JAN ADA Hot Links and Document Center links you to nearly every free publication on the ADA that is published by the federal government.

Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth Transitioning to Adulthood, a guide designed by the Office of Disability Employment Policy (ODEP), U.S. Department of Labor, through its Youth Technical Assistance Center, to help transition-age youth with significant disabilities as well as their family and friends navigate the complex world of PAS.(pdf) (doc)

The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs.

Segregated & Exploited: The Failure of the Disability Service System to Provide Quality Work, January 2011 - This National Disability Rights Network (NDRN) report identifies the barriers to employment that people with disabilities face and dispels myths about their capability to be fully employed, equally compensated, and an integral member of American workplaces and communities. It illustrates a systemic failure to provide hope and opportunity to young people with disabilities who want to transition into traditional work but instead wind up trapped in a sheltered workshop with little chance for something different.

Emergency Preparedness

The Prepared Lifestyle is a free 12-page booklet that provides easy-to-use checklists to guide you in preparing for seasonal and pandemic flu, severe storms, and other emergencies. This publication is produced by the Research and Training Center on Independent Living at the University of Kansas and the Kansas Department of Health and Environment, Bureau of Health Preparedness, with funding from the U.S. Department of Health and Human Services.

Federal Issues

ADA Questions and Answers. A 31-page booklet giving an overview of the ADA's requirements for ensuring equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation, and requiring the establishment of TDD/telephone relay services. (Spanish, Cambodian, Chinese, Hmong, Japanese, Korean, Laotian, Tagalog and Vietnamese editions available from the ADA Information Line.)

ADA National Network Disability Law Handbook - this handbook, written in FAQ format, is a guide to the basics of the Americans with Disabilities Act and other disability related laws.

The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

The Cost of Waiting, April 2011 - A TASH report on restraint, seclusion and aversive procedures one year after the passage of the Keeping All Students Safe Act in the U.S. House of Representatives. This bill represented a monumental change in protections that would allow all children to learn in a safe environment. Unfortunately for thousands of children and families, this critical legislation never reached the Senate floor. The purpose of this report is to document the high cost of waiting to protect our children.

The Cost of Waiting, Second Edition 2012 - A TASH report on restraint, seclusion and aversive procedures two years after the passage of the Keeping All Students Safe Act in the U.S. House of Representatives. This bill represented a monumental change in protections that would allow all children to learn in a safe environment. Unfortunately for thousands of children and families, this critical legislation never reached the Senate floor. The second edition of the report has been revised to document the ongoing struggle to protect our children in schools across the country.

Disability Statistics Compendium, November 2011 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities.

The Convention on the Rights of Persons with Disabilities (CRPD) is a human rights treaty that sets out the obligations of countries that ratify it to promote, protect, fulfill, and ensure the rights of persons with disabilities. The United Nations adopted the CRPD in 2006. As of May 9, 2011, 99 countries have ratified the treaty and 148 countries have signed it.  As of this writing, the U.S. has not ratified the CRPD.

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

The Disability Law Handbook from the DBTAC Southwest ADA Center provides information on rights and obligations under several federal disability laws, including an overview of the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act.

DOJ Fact Sheet on 2010 Revised ADA Requirements for Service Animals - This publication provides guidance on the term "service animal" and the service animal provisions in the Department’s new regulations.

Experience of Voters with Disabilities in the 2012 Election Cycle - This report examines the impact of the Help America Vote Act (HAVA) of 2002 by documenting the experiences of voters with disabilities during the 2012 general election cycle and offers concrete policy and procedural recommendations to improve voter participation and accessibility for citizens with disabilities now and in future elections.

Fair Housing Act Design Manual, US Department of Housing and Urban Development - This manual provides comprehensive information about accessibility requirements which must be incorporated into the design and construction of mutifamily housing covered by the Fair Housing Act. It is intended to provide clear and helpful guidance about ways to design and construct housing that complies with the accessiblity requirements of the Act.

A Guide to Disability Rights Laws. A 21-page booklet that provides a brief overview of ten Federal laws that protect the rights of people with disabilities and provides information about the federal agencies to contact for more information. (Spanish, Cambodian, Chinese, Hmong, Japanese, Korean, Laotian, Tagalog and Vietnamese editions available from the ADA Information Line.)
Disability Rights Laws (HTML)
Disability Rights Laws (PDF)
Disability Rights Laws (En Español)

Helping People with Long-Term Health Care Needs: An Insurance Program to Help People Afford Long-Term Services and Supports -April 2010, A FamiliesUSA fact sheet on the CLASS Act.

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

The High Cost of Capping Federal Medicaid Funding, April 2011 - Deficit reduction commissions and some policymakers have recommended capping federal funding to some or all of the Medicaid program. This Fact Sheet examines the pros and cons of these proposed changes.

House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton
, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan.

Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.

Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit

Medicaid's Impact: Helping People with Serious Healthcare Needs - To get a sense of how important Medicaid is for people with serious health care needs, these reports look at  the number of individuals in each state with cancer, diabetes, chronic lung disease, or heart disease or stroke who rely on Medicaid for their health coverage.

Net Effects of the Affordable Care Act on State Budgets, This Urban Institute report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.

Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.

The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).

Health Care Fraud

Health Insurance/Healthcare Reform

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

Helping People with Long-Term Health Care Needs: An Insurance Program to Help People Afford Long-Term Services and Supports -April 2010, A FamiliesUSA fact sheet on the CLASS Act.

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton
, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan.

Genworth Financial Long-Term Care National Survey: Key findings from a national survey of 800 likely voters, conducted August 14-16, 2007. - The survey found that nearly seven in ten Americans have not made any plans for their own, a spouse's or another relative's long term care needs. Yet, over half those surveyed have had a loved one who needed some form of long term care. The poll also found that close to 80 percent of the respondents want to see long term care included in the healthcare proposals offered by the presidential candidates. More than 80 percent of those surveyed also said that positions on long term care funding will be an important factor in deciding who to vote for in the 2008 election.

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

Net Effects of the Affordable Care Act on State Budgets, This Urban Institute report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.

Home and Community Based Services (HCBS) Programs

The Case for Inclusion 2013 - Since 2006, United Cerebral Palsy (UCP) has produced this annual, state-by-state ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities (ID/DD). The Case for Inclusion ranks all 50 states and the District of Columbia (D.C.)-- not on their spending, but on their outcomes for Americans with ID/DD. This report shows how well each individual state is performing overall; how each state matches up against other states regarding key data measures; and, most importantly, the top performing states with policies and practices that should be replicated. This year, The Case for Inclusion also includes three case studies, looking at Massachusetts and Kansas for managed care, and Washington state for employment issues.

Consumer Perspectives on Quality Home Care, September 2012 - This report by the National Consumer Voice for Quality Long-Term Care (Consumer Voice) seeks to understand quality care from a unique perspective; the individual receiving or accessing paid care services and support in their own home to determine how consumers define quality care, pinpoint needed care improvements and recommend policy actions to strengthen and provide more access to quality home care.

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

Disability Statistics Compendium, November 2012 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities. 2011 Disability Statistics Compendium (PDF)

Do Noninstitutional Long-Term Care Services Reduce Medicaid Spending?, Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) - Medicaid spending on home and community-based services (HCBS) has grown dramatically in recent years, but little is known about what effect these alternatives to institutional services have on overall long-term care costs. This analysis of state spending data from 1995 to 2005 shows that for two distinct population groups receiving long-term care services, spending growth was greater for states offering limited noninstitutional services than for states with large, well-established noninstitutional programs. Expansion of HCBS appears to entail a short-term increase in spending, followed by a reduction in institutional spending and long-term cost savings.

Estimating the Expense of a Mandatory Home and Community-Based Personal Assistance Services Benefit Under Medicaid; Mitchell P. LaPlante, PhD, H. Stephen Kaye, PhD, Charlene Harrington, PhD, University of California San Francisco - Personal assistance services (PAS) are essential for many people of all ages with significant disabilities, but these services are not always available to individuals at home or in the community, in large part due to a significant bias toward institutions in the Medicaid program. This study aims to provide an estimate of the expense of a mandatory personal assistance services (PAS) benefit under Medicaid for persons with low incomes, low assets, and significant disability.

Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports - The principles presented in this document are the result of intense, honest, and detailed discussions among leaders from the disability and labor communities. They provide a framework for how disability advocates can work with labor unions and emerging worker organizations to advance people’s ability to direct and control their own services and supports while also improving workers’ wages, benefits, and working conditions. (Cover Letter, Word | PDF)

Going Home - Is a booklet about home and community based options to institutional care. It explains how TILRC can help you get the healthcare services and supports you need in your own home and community. (printable version in rtf format)

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

Testimony of Mitch LaPlante, Ph.D., Associate Professor, University of California,
San Francisco before the Senate Finance Committee Hearing on "Home and Community Based Care: Expanding Options for Long Term Care" Tuesday Sept 25th, 2007 at 10am, Dirksen Office Building G-50

Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality, University of California, San Francisco, Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). - The focus of this report is to examine issues of access, cost, and quality for Medicaid HCBS programs. The trends in state Medicaid HCBS programs, target groups, participants, and expenditures are summarized. The paper shows the progress in providing Medicaid HCBS but also identifies many current problems and policies. Inequities in access to services and limited funds result in unmet needs for HCBS. HCBS cost issues have been a primary focus of policy makers and quality problems are largely not addressed. Policy recommendations are made to improve access, costs and quality at the federal and state levels in the future. (report - pdf/html) (summary - pdf/html)

Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.

Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit

Medicaid Home and Community-Based Service Programs: Data Update, Kaiser Commission on Medicaid and the Uninsured, December 19, 2008, Publication Number: 7720-02 - Developing home and community-based service (HCBS) alternatives to institutional care has been a priority for many state Medicaid programs over the last two decades. In 2005, overall spending on Medicaid HCBS increased 10 percent, with 2.8 million individuals being served through these programs. This report presents a summary of the main trends to emerge for the three Medicaid HCBS programs and the results of a survey of policies such as eligibility criteria and waiting lists.

Medicaid, the Budget, and Deficit Reduction: The Threat Continues by Families USA, August 2011 - This policy paper explains the threat to Medicaid posed by the debt ceiling compromise and urges advocates to speak up about the importance of Medicaid and the dangers of cutting the program.

Medicaid's Impact: Helping People with Serious Healthcare Needs - To get a sense of how important Medicaid is for people with serious health care needs, these reports look at  the number of individuals in each state with cancer, diabetes, chronic lung disease, or heart disease or stroke who rely on Medicaid for their health coverage.

Medicaid Managed Care for People with Disabilities: Policy and Implementation Considerations for State and Federal Policymakers, March 13, 2013 - This report by the National Council on Disability addresses the implications of managed health care and long-term supports for Medicaid-eligible people with disabilities to help readers gain a better understanding of the intricacies of Medicaid managed care practices and the ways in which these practices can and should affect services for program beneficiaries with disabilities. (PDF) (doc)

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

On the Verge: The Transformation of Long Term Services and Supports, by Mike Cheek, Martha Roherty, Leslie Finnan, Eunhee (Grace) Cho - National Association of States United for Aging and Disabilities, Jenna Walls, Kathleen Gifford - Health Management Associates, Wendy Fox-Grage, Kathleen Ujvari - AARP Public Policy Institute, February, 2012 - Many states are on the verge of transforming the financing and delivery of long-term services and supports (LTSS). On the heels of the Great Recession, state policymakers are looking at solutions that include moving toward capitated, risk-based managed care for Medicaid enrollees with LTSS needs and focusing on better care and cost containment for people who are dually eligible for both Medicare and Medicaid coverage, the so-called “dual eligibles.” This report presents the findings from a state survey conducted in the fall of 2011. State aging and disability agencies and Medicaid agencies responded with LTSS information on programs for older individuals and adults with physical disabilities. Forty-eight states and the District of Columbia responded to the survey. (report summary)

Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective  / Research Report March 2009— This AARP Public Policy Institute Insight on the Issues highlights research showing, over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.

Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).

Housing

DOJ Fact Sheet on 2010 Revised ADA Requirements for Service Animals - This publication provides guidance on the term "service animal" and the service animal provisions in the Department’s new regulations.

Institutions

Medicare Atypical Antipsychotic Drug Claims for Elderly Nursing Home Residents, This report by the Depeartment of Health and Human Services (HHS) Office of the Inspector General (OIG) uncovers wide spread overuse and misuse of antipsychotic medications in our country's nursing facilities.

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Internet

Kansas Government

The Cost of Untreated Mental Illness in Greater Kansas City, Health Care Foundation of Greater Kansas City, February 2012 - Approximately one in every 10 adults in the Greater Kansas City area has a serious mental illness (SMI).Without treatment, SMI can lead to unemployment, increased hospital and emergency room use, incarceration, suicide, and early death due to chronic medical conditions. An economic model was developed by The HSM Group, Ltd. to quantify the costs of untreated SMI among adults. (Cost of Untreated Mental Illness in Kansas Factsheet)

Legislative Procedure in Kansas, Kansas Legislative Research Department, November 2006

Kansas Accessibility Modification Program (KAMP) Factsheet (KAMP assists eligible persons with disabilities in making accessiblility modifications to their residence.)

Long-term Services and Supports

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

Disability Statistics Compendium, November 2012 (PDF) - The Disability Statistics Compendium is an annual publication of the National Institute for Disability and Rehabilitation Research containing statistics on people with disabilities and government programs that serve them. The Compendium is designed to serve as a reference guide to government publications which contain additional statistical information on people with disabilities. 2011 Disability Statistics Compendium (PDF)

Easter Seals Siblings Study, November 2012 - How is life different for adults who have siblings with developmental disabilities, many who have assumed – or will assume – primary caregiving responsibilities for their brother or sister with disabilities? This Easter Seals study sheds light on the experiences of sibling caregivers as well as insight on the services and supports they need. (full report, pdf) (executive summary, pdf)

Family Caregivers are Wired for Health by Susannah Fox, Maeve Duggan, Kristen Purcell, June 20, 2013 - This Pew Research Center survey finds the number of people caring for an adult or child with significant health issues is up from 30% of U.S. adults in 2010. The study finds that the activity of caregiving cuts across most demographic groups, but is especially prevalent among adults ages 30 to 64, a group traditionally still in the workforce. These caregivers are heavy technology users and are much more likely than other adults to take part in a wide range of health-related activities.

Home Use Devices: How to Prepare for and Handle Power Outages for Medical Devices that Require Electricity - As a home medical device user, it is important that your device works during a power outage and that you have a plan in place to ensure you know what to do. This completed booklet will help you have an established plan to obtain and organize your medical device information, take necessary actions so that you can continue to use your device, have the necessary supplies for the operation of your device, and know where to go or what to do during a power outage.

The Intersection between Budget Cuts to Services and Civil Rights of People with Disabilities under the “Olmstead” Decision, Presented to: The House Committee on Long Term Care and Aging, Provided by:  Mike Oxford, Executive Director, Topeka Independent Living Resource Center, January 26, 2010 - This testimony presents a cogent argument regarding the necessity for systematic, comprehensive, long range planning to address the future long term care needs of our state that culminates in the development of an Olmstead Plan for the state of Kansas.

Medicaid's Impact: Helping People with Serious Healthcare Needs - To get a sense of how important Medicaid is for people with serious health care needs, these reports look at  the number of individuals in each state with cancer, diabetes, chronic lung disease, or heart disease or stroke who rely on Medicaid for their health coverage.

Medicaid Managed Care for People with Disabilities: Policy and Implementation Considerations for State and Federal Policymakers, March 13, 2013 - This report by the National Council on Disability addresses the implications of managed health care and long-term supports for Medicaid-eligible people with disabilities to help readers gain a better understanding of the intricacies of Medicaid managed care practices and the ways in which these practices can and should affect services for program beneficiaries with disabilities. (PDF) (doc)

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

Valuing the Invaluable: 2011 Update - The Growing Contributions and Costs of Family Caregiving by Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, AARP Public Policy Institute, July 2011 - This report updates national and individual state estimates of the economic value of family caregiving using the most current available data. The report also explains the contributions of family caregivers, details the costs and consequences of providing family care, and provides policy recommendations to better support caregiving families.

Medicaid

The Case for Inclusion 2013 - Since 2006, United Cerebral Palsy (UCP) has produced this annual, state-by-state ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities (ID/DD). The Case for Inclusion ranks all 50 states and the District of Columbia (D.C.)-- not on their spending, but on their outcomes for Americans with ID/DD. This report shows how well each individual state is performing overall; how each state matches up against other states regarding key data measures; and, most importantly, the top performing states with policies and practices that should be replicated. This year, The Case for Inclusion also includes three case studies, looking at Massachusetts and Kansas for managed care, and Washington state for employment issues.

The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.

The Cost and Coverage Implications of the ACA Medicaid Expansion: National and State-by-State Analysis, November 2012 - This report by the Kaiser Family Foundation shows modest state costs for implementing the Medicaid expansion under the Affordable Care Act compared to significant increases in federal funds, allowing some states to see net budget savings even as millions of low-income uninsured Americans gain health coverage. (Full Report - pdf) (Executive Summary - pdf)

Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports

Do Noninstitutional Long-Term Care Services Reduce Medicaid Spending?, Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) - Medicaid spending on home and community-based services (HCBS) has grown dramatically in recent years, but little is known about what effect these alternatives to institutional services have on overall long-term care costs. This analysis of state spending data from 1995 to 2005 shows that for two distinct population groups receiving long-term care services, spending growth was greater for states offering limited noninstitutional services than for states with large, well-established noninstitutional programs. Expansion of HCBS appears to entail a short-term increase in spending, followed by a reduction in institutional spending and long-term cost savings.

Estimating the Expense of a Mandatory Home and Community-Based Personal Assistance Services Benefit Under Medicaid; Mitchell P. LaPlante, PhD, H. Stephen Kaye, PhD, Charlene Harrington, PhD, University of California San Francisco - Personal assistance services (PAS) are essential for many people of all ages with significant disabilities, but these services are not always available to individuals at home or in the community, in large part due to a significant bias toward institutions in the Medicaid program. This study aims to provide an estimate of the expense of a mandatory personal assistance services (PAS) benefit under Medicaid for persons with low incomes, low assets, and significant disability.

Going Home - Is a booklet about home and community based options to institutional care. It explains how TILRC can help you get the healthcare services and supports you need in your own home and community. (printable version in rtf format)

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

The High Cost of Capping Federal Medicaid Funding, April 2011 - Deficit reduction commissions and some policymakers have recommended capping federal funding to some or all of the Medicaid program. This Fact Sheet examines the pros and cons of these proposed changes.

Testimony of Mitch LaPlante, Ph.D., Associate Professor, University of California,
San Francisco before the Senate Finance Committee Hearing on "Home and Community Based Care: Expanding Options for Long Term Care" Tuesday Sept 25th, 2007 at 10am, Dirksen Office Building G-50

The Home and Community Based Services (HCBS) Physically Disabled Waiver (HCBS/PD) Policy and Procedure manual contains the official policies and procedures to be used when providing services under the HCBS waiver for persons

Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality, University of California, San Francisco, Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). - The focus of this report is to examine issues of access, cost, and quality for Medicaid HCBS programs. The trends in state Medicaid HCBS programs, target groups, participants, and expenditures are summarized. The paper shows the progress in providing Medicaid HCBS but also identifies many current problems and policies. Inequities in access to services and limited funds result in unmet needs for HCBS. HCBS cost issues have been a primary focus of policy makers and quality problems are largely not addressed. Policy recommendations are made to improve access, costs and quality at the federal and state levels in the future. (report - pdf/html) (summary - pdf/html)

House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton
, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan.

Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.

Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit

Medicaid Home and Community-Based Service Programs: Data Update, Kaiser Commission on Medicaid and the Uninsured, December 19, 2008, Publication Number: 7720-02 - Developing home and community-based service (HCBS) alternatives to institutional care has been a priority for many state Medicaid programs over the last two decades. In 2005, overall spending on Medicaid HCBS increased 10 percent, with 2.8 million individuals being served through these programs. This report presents a summary of the main trends to emerge for the three Medicaid HCBS programs and the results of a survey of policies such as eligibility criteria and waiting lists.

Medicaid, the Budget, and Deficit Reduction: The Threat Continues by Families USA, August 2011 - This policy paper explains the threat to Medicaid posed by the debt ceiling compromise and urges advocates to speak up about the importance of Medicaid and the dangers of cutting the program.

Medicaid's Impact: Helping People with Serious Healthcare Needs - To get a sense of how important Medicaid is for people with serious health care needs, these reports look at  the number of individuals in each state with cancer, diabetes, chronic lung disease, or heart disease or stroke who rely on Medicaid for their health coverage.

Medicaid Managed Care for People with Disabilities: Policy and Implementation Considerations for State and Federal Policymakers, March 13, 2013 - This report by the National Council on Disability addresses the implications of managed health care and long-term supports for Medicaid-eligible people with disabilities to help readers gain a better understanding of the intricacies of Medicaid managed care practices and the ways in which these practices can and should affect services for program beneficiaries with disabilities. (PDF) (doc)

Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)

Money Follows the Person Demonstration Program: A Profile of Participants, By Debra J. Lipson and Susan R. Williams, Mathematica Policy Research, Inc., January 2011 - This report presents a profile of MFP participants who transitioned from institutions to qualified home or community-based residences from the start of the program through June 2010. It describes their demographic characteristics, the types of institutions in which they resided before their transition, and community living arrangements. It also discusses the reasons for discrepancies between the population eligible for the program and those who have actually enrolled so far, and recent changes that might narrow the differences in the future.

Net Effects of the Affordable Care Act on State Budgets, This Urban Institute report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.

On the Verge: The Transformation of Long Term Services and Supports, by Mike Cheek, Martha Roherty, Leslie Finnan, Eunhee (Grace) Cho - National Association of States United for Aging and Disabilities, Jenna Walls, Kathleen Gifford - Health Management Associates, Wendy Fox-Grage, Kathleen Ujvari - AARP Public Policy Institute, February, 2012 - Many states are on the verge of transforming the financing and delivery of long-term services and supports (LTSS). On the heels of the Great Recession, state policymakers are looking at solutions that include moving toward capitated, risk-based managed care for Medicaid enrollees with LTSS needs and focusing on better care and cost containment for people who are dually eligible for both Medicare and Medicaid coverage, the so-called “dual eligibles.” This report presents the findings from a state survey conducted in the fall of 2011. State aging and disability agencies and Medicaid agencies responded with LTSS information on programs for older individuals and adults with physical disabilities. Forty-eight states and the District of Columbia responded to the survey. (report summary)

Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.

The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs.

The Role of Medicaid in State Economies: A Look at the Research, Kaiser Commission on Medicaid and the Uninsured, January 09, 2009, Publication Number: 7075-02 - This policy brief synthesizes the results of 29 studies in 23 states that examine the role Medicaid plays in state and local economies. These studies estimate the economic stimulus derived from Medicaid spending, and also analyze the adverse effects on the state economy from reducing Medicaid spending. This policy brief provides an overview of Medicaid financing, explains the methods used to assess economic impact and summarizes the main findings from the research. (Policy Brief, Summary)

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective  / Research Report March 2009— This AARP Public Policy Institute Insight on the Issues highlights research showing, over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.

Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).

Medicare

Medicare & You 2012 contains important information about what’s new, health plans, prescription drug plans, Medicare benefits, rights and protections, and answers to the most frequently asked questions about Medicare.

Medicare Atypical Antipsychotic Drug Claims for Elderly Nursing Home Residents, This report by the Depeartment of Health and Human Services (HHS) Office of the Inspector General (OIG) uncovers wide spread overuse and misuse of antipsychotic medications in our country's nursing facilities.

Medicare Beneficiaries Less Likely To Experience Cost- And Access-Related Problems Than Adults With Private Coverage, Karen Davis, Ph.D., Kristof Stremikis, M.P.P., M.P.H., Michelle M. Doty, Ph.D., and Mark A. Zezza, Ph.D., Health Affairs, July 18, 2012 - This recent survey found that Medicare beneficiaries age 65 and older are more satisfied with their health insurance, have better access to care, and are less likely to have problems paying medical bills than working-age adults who get insurance through employers or purchase coverage on their own.

The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs.

Mental Health

The Cost of Untreated Mental Illness in Greater Kansas City, Health Care Foundation of Greater Kansas City, February 2012 - Approximately one in every 10 adults in the Greater Kansas City area has a serious mental illness (SMI).Without treatment, SMI can lead to unemployment, increased hospital and emergency room use, incarceration, suicide, and early death due to chronic medical conditions. An economic model was developed by The HSM Group, Ltd. to quantify the costs of untreated SMI among adults. (Cost of Untreated Mental Illness in Kansas Factsheet)

State Mental Health Cuts: The National Crisis, March 2011 -this report documents the state-by-state funding changes for public mental health services since 2009 for youth and adults living with serious mental illness. These cuts are likely to worsen in 2011 and 2012. The report also describes how states have chosen to implement these funding cuts. The report concludes with policy recommendations, focused on the steps that should be taken to ensure that valuable public resources are spent wisely and effectively.

State Mental Health Cuts: The Continuing Crisis, November 2011- this report by the National Alliance on Mental Illness (NAMI) examines budgets approved for 2012 by state legislatures to document the nation's deepening mental health crisis. According to the report, Kansas ranked ninth amongst the top 10 states with the greatest proportion of cuts in mental health care from FY2009 to FY2012.


Olmstead

The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.

Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.

The Intersection between Budget Cuts to Services and Civil Rights of People with Disabilities under the “Olmstead” Decision, Presented to: The House Committee on Long Term Care and Aging, Provided by:  Mike Oxford, Executive Director, Topeka Independent Living Resource Center, January 26, 2010 - This testimony presents a cogent argument regarding the necessity for systematic, comprehensive, long range planning to address the future long term care needs of our state that culminates in the development of an Olmstead Plan for the state of Kansas.

Separate and Unequal: States Fail to Fulfill the Community Living Promise of the Americans with Disabilities Act, July 18, 2013 - This U.S. Senate Health, Education, Labor and Pensions (HELP) Committee report provides an overview of the states’ ongoing struggle to fulfill the community living promise of the ADA and Olmstead.

Statement of the Department of Housing and Urban Development on the Role of Housing in Accomplishing the Goals of Olmstead - this guidance provides information to clarify how recipients of federal financial assistance from HUD can assist state and local Olmstead efforts, and to encourage housing providers to support Olmstead implementation by increasing the integrated housing opportunities that are available for individuals with disabilities who are transitioning from, or at serious risk of entering, institutions, hospitals, nursing homes, adult care facilities, and other restrictive, segregated settings.

Statement of the Department of Justice on Enforcement of the Integration Mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C., U. S. Department of Justice, June 22, 2011 - DOJ has created this technical assistance guide to assist individuals in understanding their rights and public entities in understanding their obligations under the ADA and Olmstead.

10-Plus Years After the Olmstead Ruling, By Eric Carlson and Gene Coffey
National Senior Citizens Law Center, September 2010 - A new report from the National Senior Citizens Law Center, with support from The SCAN Foundation, calls on states to use the implementation of the Affordable Care Act to end Medicaid’s long-standing bias toward funding long-term care in institutional settings such as nursing homes.


Prescription Drugs

Medicare Atypical Antipsychotic Drug Claims for Elderly Nursing Home Residents, This report by the Depeartment of Health and Human Services (HHS) Office of the Inspector General (OIG) uncovers wide spread overuse and misuse of antipsychotic medications in our country's nursing facilities.

Recreation/Travel/Entertainment

State/Local Issues

Technology

Adapting Motor Vehicles For People With Disabilities: A Proven Process for Gaining Freedom on the Road - this brochure from the National Highway Traffic Safety Administration (NHTSA) is based on the experience of driver rehabilitation specialists and other professionals who work with individuals who require adaptive devices for their motor vehicles. It is centered around a proven process that can help you avoid costly mistakes when purchasing and modifying a vehicle with adaptive equipment. Also included is general information on cost savings, licensing requirements, and organizations to contact for help.

Family Caregivers are Wired for Health by Susannah Fox, Maeve Duggan, Kristen Purcell, June 20, 2013 - This Pew Research Center survey finds the number of people caring for an adult or child with significant health issues is up from 30% of U.S. adults in 2010. The study finds that the activity of caregiving cuts across most demographic groups, but is especially prevalent among adults ages 30 to 64, a group traditionally still in the workforce. These caregivers are heavy technology users and are much more likely than other adults to take part in a wide range of health-related activities.

Transportation

Veterans

ADA: Know Your Rights Returning Service Members - This publication is designed to inform US military personnel who became disabled while on active duty of their rights under the ADA and provide information on where to go to get assistance.

Visitability

Increasing Home Access: Designing for Visitability, Research Report, Jordana L. Maisel, IDEA Center; Eleanor Smith, Concrete Change; Edward Steinfeld, IDEA Center ; August 2008 - (report)(in brief) Visitability initiatives that support aging independently in one's home and community are the subject of this AARP Public Policy Institute Research Report. The authors discuss the barriers to visitability implementation and opportunities for further acceptance of these design parameters in the construction of new homes. Visitability is a movement that seeks to increase the supply of accessible housing through the inclusion of three basic structural features at the time of home construction: a zero-step entrance, wide doorways, and at least a half bath on the main floor of the home. (109 pages), Pub ID: 2008-14

A Practical Guide to Universal Home Design, This booklet by the Iowa Program for Assistive Technology, a program of the University of Iowa Hospitals and Clinics, Center for Disabilities and Development, Iowa’s University Center for Excellence on Disabilities is a room by room checklist you can use to help you consider your options when incorporating the principles of universal design to increase the ease and flexibility of your home.

Voting Rights

Additional Monitoring of Polling Places Could Further Improve Accessibility (GAO-09-9410), Sepember 2009 - This General Accountability Office (GAO) report is based on a national survey of polling places during the 2008 election assessing both physical and technological access. The report found that compared to 2000, the proportion of polling places without potential impediments increased and almost all polling places had an accessible voting system. However, 46 percent of polling places had an accessible voting system that could pose a challenge to certain voters with disabilities, such as voting stations that were not arranged to accommodate voters using wheelchairs. (Read highlights of the report)

Experience of Voters with Disabilities in the 2012 Election Cycle - This report examines the impact of the Help America Vote Act (HAVA) of 2002 by documenting the experiences of voters with disabilities during the 2012 general election cycle and offers concrete policy and procedural recommendations to improve voter participation and accessibility for citizens with disabilities now and in future elections.

Power in Numbers: A Profile of American Voters with Disabilities - this first of its kind survey, by the National Youth Transitions Collaborative, examines the political impact of of people with disabilities, their families and caregivers. The results reveal information about the political views, advocacy trends and partisanship of people with disabilities.

Help America Vote Act of 2002, Public Law  107-252 - HAVA requires state and local governments to make polling places accessible to voters with disabilities, including providing at least one voting system accessible to individuals with disabilities at each polling location, in a manner that provides the same opportunity for access and participation (including privacy and independence) as for other voters.

Voters with Disabilities: More Polling Places Had No Potential Impediments Than in 2000, but Challenges Remain, GAO-09-685, June 2009 - This report by the U.S. Government Accountability Office (GAO) finds that access for voters with disabilities has improved since the 2000 election, but many problems remain.


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