HEALTH and LONG-TERM SERVICES
This page has information on long-term care issues and resources to help you live independently in your own home and community including links to:
News
CLASS Act: Abandoned yet defended, By Brett Norman and Jennifer Haberkorn, Politico, January 31, 2012
Fight for CLASS Act Continues, NCIL Advocates Needed Now!, From the National Council on Independent Living (NCIL), January 31, 2012
Calculating A Long-Term Care Policy: Will It Cover Your Needs, Can You Pay For It And Can You Afford Not To Have It?, By Caroline E. Mayer, Kaiser Health News, January 23, 2012
New Definition of Autism Will Exclude Many, Study Suggests, By Benedict Carey, New York Times, January 19, 2012
National Health Spending Grew Slowly In 2010, By Marilyn Werber Serafini, Kaiser Health News, January 09, 2012
Health insurers’ good year, By Sarah Kliff, Washington Post, January 05, 2012
Reversal On Health Mandate Came Late For Gingrich And Romney, By Julie Rovner, National Public Radio (NPR), December 28, 2011
The Champion of Painkillers, By Charles Ornstein and Tracy Weber, , ProPublica, December 23, 2011
New Affordable Care Act Demonstration to Provide Care at Home for Medicare Patients, The Centers for Medicare & Medicaid Services (CMS), December 20, 2011
Wage Protection for Home Care Workers, By Steve Greenhouse, New York Times, December 15, 2011
Obama to seek overtime for home care workers, By Richard Wolf, USA TODAY, December 15, 2011
States Extraordinary Community-Based Services Dichotomy: DD vs. A/PD, Information Bulletin #347 from Steve Gold's Treasured Nuggets of Information, December 05, 2011
Lipitor's patent loss is consumers' gain, By Duke Helfand, Los Angeles Times, December 01, 2011
2010 MA Data - Progress Since the 1999 Olmstead Decision - How Is Your State Doing?, Information Bulletin #345 from Steve Gold's Treasured Nuggets of Information, November 28, 2011
Report: U.S. Outspends Other Countries On Health Care, By Julie Appleby, Kaiser Health News, November 23, 2011
Insurers 'terrified' of Supreme Court ruling on healthcare reform law, By Julian Pecquet, The Hill, November 22, 2011
Shortage Of ADHD Drugs Has Parents, Doctors Scrambling, By Richard Knox, National Public Radio (NPR), November 21, 2011
Holiday dinners with your special needs child, By Dawn Villarreal, One Place for Special Needs, November 2011
Super Committee Action Alert, From ADAPT, November 16, 2011
The New Poor: Elderly Hit Hard on Health Costs, By Merrill Goozner, The Fiscal Times, November 8, 2011
As America ages, issue of long-term care emerges, By Eileen Ambrose, The Baltimore Sun, November 6, 2011
Abuses in assisted-living facilities come under Senate panel's spotlight, By Erika Bolstad, McClatchy Newspapers, November 02, 2011
Medicaid 1115 Waivers and People With Disabilities, Information Bulletin # 344 from Steve Gold's Treasured Nuggets of Information, November 01, 2011
Feds Look To Make Health Care More Accessible, By Michelle Diament, Disability Scoop, November 01, 2011
Big-Name Drugs Are Falling Off The 'Patent Cliff', By Fred Mogul, WNYC, October 24, 2011
Health Tasks Delegated to Personal Care Community Workers, Information Bulletin # 343 from Steve Gold's Treasured Nuggets of Information, October 23, 2011
State Scorecard on Long-Term Services, Information Bulletin # 342 from Steve Gold's Treasured Nuggets of Information, October 10, 2011
Shortages Lead Doctors To Ration Critical Drugs, By Richard Knox, National Public Radio (NPR), October 03, 2011
My Medicaid Matters Rally: A Huge Success!, From the National Council on Independent Living (NCIL) Weekly Advocacy Monitor, September 28, 2011
Seniors air their financial worries at annual AARP gathering, By Anna Gorman, Los Angeles Times, September 24, 2011
The Recession's 'Silent Mental Health Epidemic', By Michellle Hirsch and Eric Pianin, The Fiscal Times, September 23, 2011
Rally on Capitol Hill: 'Medicaid Matters', By George Zornick, The Nation, September 21, 2011
My Medicaid Matters Rally to Draw More Than a Thousand Advocates to Washington, D.C., From ADAPT, September 21, 2011
Advocates Prepare for the Largest Medicaid Rally in the Nation, From the National Council on Independent Living (NCIL), September 19, 2011
Join Us In D.C. to Help Put a Face to the “My Medicaid Matters” Rally!, From the National Council on Independent Living (NCIL), September 01, 2011
My Medicaid Matters, A Message from Steve Gold's Treasured Nuggets of Information, September 01, 2011
In Loving Memory of Fred Fay, From the National Council on Independent Living (NCIL), August 24, 2011
Ranks of uninsured Americans have soared in recession, By Diane Stafford, Kansas City Star, August 23, 2011
Senior Boom Creates A Demand For Home Health Workers, By Jessica Marcy, Kaiser Health News, August 15, 2011
"MY MEDICAID MATTERS" RALLY IN D.C. ON SEPT. 21, 2011, A Message from Steve Gold's Treasured Nuggets of Information, August 11, 2011
Advocates Allege Two-Faced Approach To Community Living, By Michelle Diament, Disability Scoop, August 09, 2011
Disability Rights Group Outraged and Demands to Meet with Secretary Sebelius after CMS Issues Guidance on Cutting Home and Community Based Services, From ADAPT, August 08, 2011
AARP Finds Toll On Family Caregivers Is 'Huge', By Jennifer Ludden, National Public Radio (NPR), July 18 2011
Advocacy Organizations and Informational Resources
ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.
Assistance Dogs International, Inc. (ADI) is a coalition of not for profit organizations that train and place Assistance Dogs. The purpose of ADI is to improve the areas of training, placement, and utilization of Assistance Dogs as well as staff and volunteer education. If you want information about how to get an assistance dog, please go to Member Programs List and Links to locate a program that may be able to train a dog for you.
BrainLine.org is a comprehensive website where people can find authoritative, useful, and timely information and resources preventing, treating, and living with traumatic brain injury. BrainLine includes special sections for people with TBI, their families and friends, and the professionals who work with them. With new information featured each week, the site is designed to be a helpful place where people can gather information, learn about new research, and find a community of support and hope.
The Centers for Medicare & Medicaid Services (CMS), formerly known as the Health Care Financing Administration (HCFA), is the federal agency responsible for administering the Medicare, Medicaid, SCHIP (State Children's Health Insurance), HIPAA (Health Insurance Portability and Accountability Act), CLIA (Clinical Laboratory Improvement Amendments), and several other health-related programs.
The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the United States.
The Coalition for Community Integration (CCI) is working to change federal policy so that Americans with disabilities and older Americans have a real choice in long term services and supports. The Coalition is working toward passage of the Community Choice Act (S 683/HR1670) which would eliminate the institutional bias in Medicaid.
This section of Disability.gov offers a wide range of information and resources to help people with disabilities live independently and participate fully in all aspects of community life.
Disaboom.com was founded by Dr. J. Glen House, a physician specializing in physical medicine and rehabilitation who is also a quadriplegic. His firsthand knowledge of the challenges faced by individuals with disabilities and those whose lives they touch has driven the Disaboom.com mission: to create the first comprehensive, evolving source of information, insight, and personal engagement for the disability community.
The European Network on Independent Living (ENIL) is a European wide network of disabled people. It represents a forum intended for all disabled people, independent living organisations and their non-disabled allies on the issues of independent living and the independent living movement. ENIL and its member organisations believe that full citizenship and human rights for disabled people will only be achieved through increasing awareness, challenging traditional services and positive debate throughout Europe and internationally.
Families USA is a grassroots website for consumers about all kinds of health care coverage. They have several reports on various Medicaid programs and ideas on how to advocate for each state.
Independent Living Research Utilization (ILRU) provides research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community based services and health issues for people with disabilities.
The Kaiser Family Foundation is non-profit, private operating foundation dedicated to providing information and analysis on health care issues to policymakers, the media, the health care community and the general public. The Foundation is not associated with Kaiser Permanente or Kaiser Industries.
Kaiser Health News (KHN) is a nonprofit news organization committed to in-depth coverage of health care policy and politics. KHN’s mission is to provide high-quality coverage of health policy issues and developments at the federal and state levels. In addition, KHN covers trends in the delivery of health care and in the marketplace. Their website also features daily summaries of major health care news from across the nation, as well as original videos and a broad range of commentary from contributing writers and experts.
The National Resource Directory provides wounded, ill and injured service members and veterans, their families, families of the fallen and those who support them with a web-based directory of valuable resources.
It delivers information on, and access to, the full range of medical and non-medical services and resources needed to achieve their personal and professional goals across the transitions from recovery to rehabilitation to community reintegration.
The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. Founded in 1982, NCIL represents thousands of organizations and individuals including: Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), individuals with disabilities, and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.
New Mobility Magazine encourages the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy.
NICHCY, the National Dissemination Center for Children with Disabilities, offers a vast repository of information on disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA, the nation’s special education law; and research-based information on effective practices for children with disabilities.
Ouch! is a website from the BBC that reflects the lives and experiences of disabled people. It has articles, blogs, a very busy messageboard and an award-winning downloadable radio show - The Ouch Podcast. It's aimed at those with a stakehold in disability: family, friends, professionals and, rather importantly, disabled people themselves - without whom all this would be a bit meaningless.
Steve Gold's Nuggets is a website and listserve maintained by renowned disability rights attorney Steve Gold. It contains timely, useful information on topics of importance to people with disabilities, such as, housing, Medicaid, nursing homes and education.
TASH is an international leader in disability advocacy. Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates.
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.
Working Together: Personal Assistance Training and You provides training modules, online tools, links and additional informational resources to help you to hire, train and work with your personal assistant.
Publications
2011 Alzheimer's Disease Facts and Figures is a report detailing the growing prevalence and escalating impact of Alzheimer’s and dementia on individuals, caregivers, families, government and the nation’s healthcare system.
Annual Disability Status Reports, from Cornell University, provide policy makers, disability advocates, reporters, and the public with a summary of the most recent demographic and economic statistics on the non-institutionalized population with disabilities. They contain information on the population size and disability prevalence for various demographic subpopulations, as well as statistics related to employment, earnings, and household income. Comparisons are made to people without disabilities and across disability types. Disability Status Reports and other statistics are available for each state, DC, and Puerto Rico at www.DisabilityStatistics.org.
A Balancing Act: State Long-Term Care Reform Research Report, July 2008 - This AARP Public Policy Institute research paper examines the extent to which states have balanced the delivery of Medicaid-funded long-term care (LTC) services and supports to people in their homes (or in more home-like settings in their communities) and in institutions. What is unique about this report is its primary focus on older people and adults with physical disabilities separate from other LTC populations, such as people with developmental disabilities. The paper explores what states have been able to accomplish under current Medicaid law and addresses the impact that federal policies have on the states’ ability to balance service delivery.
The Community Choice Act: A Vision for Attendant Services and Supports for the New Millennium is a brochure designed to assist advocates in promoting the Community Choice Act (S 683/HR 1670). The Community Choice Act (CCA) would give individuals who receive Medicaid and who are eligible for nursing facility services or other institutional care equal access to community-based services and supports. It includes background information, a summary of the legislation, answers to frequently asked questions and talking points on CCA.
The Cost and Benefits of the Community Choice Act (CCA) for Middle Class Taxpayers (text) is a factsheet on an April 2010 Harris poll that shows the affordablity of the Community Choice Act and taxpayers' willingness to fund home and community based options in long-term services and supports.
Cutting Medicaid: Harming Seniors and People with Disabilities Who Need Long-Term Care by Families USA, May 2011 -This report assesses the human impact of proposed Medicaid cuts on those who need long-term care, as well as their families. It provides state-specific numbers on how many people would be affected by cuts, as well as on how the cuts would hurt families and state workers. | State Reports
Diabetes and SCI is the first in a series of educational brochures by the Rehabilitation Research and Training Center on Spinal Cord Injury (RRTC on SCI)focused on specific health concerns and issues of long-term spinal cord injury survivors. This brochure is intended for spinal cord injury survivors living in the community to help maintain their health.
Do Noninstitutional Long-Term Care Services Reduce Medicaid Spending?, Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) - Medicaid spending on home and community-based services (HCBS) has grown dramatically in recent years, but little is known about what effect these alternatives to institutional services have on overall long-term care costs. This analysis of state spending data from 1995 to 2005 shows that for two distinct population groups receiving long-term care services, spending growth was greater for states offering limited noninstitutional services than for states with large, well-established noninstitutional programs. Expansion of HCBS appears to entail a short-term increase in spending, followed by a reduction in institutional spending and long-term cost savings.
Estimating the Expense of a Mandatory Home and Community-Based Personal Assistance Services Benefit Under Medicaid; Mitchell P. LaPlante, PhD, H. Stephen Kaye, PhD, Charlene Harrington, PhD, University of California San Francisco - Personal assistance services (PAS) are essential for many people of all ages with significant disabilities, but these services are not always available to individuals at home or in the community, in large part due to a significant bias toward institutions in the Medicaid program. This study aims to provide an estimate of the expense of a mandatory personal assistance services (PAS) benefit under Medicaid for persons with low incomes, low assets, and significant disability.
Going Home - Is a booklet about home and community based options to institutional care. It explains how TILRC can help you get the healthcare services and supports you need in your own home and community. (printable version in rtf format)
Genworth Financial Long-Term Care National Survey: Key findings from a national survey of 800 likely voters, conducted August 14-16, 2007. - The survey found that nearly seven in ten Americans have not made any plans for their own, a spouse's or another relative's long term care needs. Yet, over half those surveyed have had a loved one who needed some form of long term care. The poll also found that close to 80 percent of the respondents want to see long term care included in the healthcare proposals offered by the presidential candidates. More than 80 percent of those surveyed also said that positions on long term care funding will be an important factor in deciding who to vote for in the 2008 election.
Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports - The principles presented in this document are the result of intense, honest, and detailed discussions among leaders from the disability and labor communities. They provide a framework for how disability advocates can work with labor unions and emerging worker organizations to advance people’s ability to direct and control their own services and supports while also improving workers’ wages, benefits, and working conditions. (Cover Letter, Word | PDF)
Helping People with Long-Term Health Care Needs: An Insurance Program to Help People Afford Long-Term Services and Supports -April 2010, A FamiliesUSA fact sheet on the CLASS Act.
Helping People with Long-Term Health Care Needs: Improving Access to Home- and Community-Based Services in Medicaid - April 2010, A FamiliesUSA fact sheet on the Community First Choice State Plan Option.
The High Cost of Capping Federal Medicaid Funding, April 2011 - Deficit reduction commissions and some policymakers have recommended capping federal funding to some or all of the Medicaid program. This Fact Sheet examines the pros and cons of these proposed changes.
Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality, University of California, San Francisco, Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). - The focus of this report is to examine issues of access, cost, and quality for Medicaid HCBS programs. The trends in state Medicaid HCBS programs, target groups, participants, and expenditures are summarized. The paper shows the progress in providing Medicaid HCBS but also identifies many current problems and policies. Inequities in access to services and limited funds result in unmet needs for HCBS. HCBS cost issues have been a primary focus of policy makers and quality problems are largely not addressed. Policy recommendations are made to improve access, costs and quality at the federal and state levels in the future. (report - pdf/html) (summary - pdf/html)
The Home and Community Based Services (HCBS) Physically Disabled Waiver (HCBS/PD) Policy and Procedure manual contains the official policies and procedures to be used when providing services under the HCBS waiver for persons with physical disabilities.
House Republican Budget Plan: State-by-State Impact of Changes in Medicaid Financing by
John Holahan, Matthew Buettgens, Vicki Chen, Caitlin Carroll, and Emily Lawton, Kaiser Family Foundation, May 2011 - This analysis projects the state-by-state impact of converting Medicaid into a block grant and eliminating the planned expansion of the program by repealing the health reform law, as called for under the House Budget Plan. It finds that the plan would trigger major reductions in Medicaid program spending that could result in significant enrollment decreases compared to current projections, a shift with big implications for states, hospitals and tens of millions of low-income Americans who likely would wind up uninsured. (Study Overview)
ILRU Publications - ILRU has developed a variety of publications on independent living subjects, including a technical report series; monographs outlining the implications of health care reform for independent living; ADA resource materials available in both English and Spanish; directories of independent living centers and of independent living support materials; and handbooks providing background information on the independent living movement and on establishing and operating an independent living center.
INCITEMENT is the quarterly newsletter of the grassroots disability rights organization ADAPT. ADAPT's main issue is ending the institutional bias in feredral long-term healthcare policy so that people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions. Toward that end they are vigorously advocating for the passage of the Community Choice Act.
Keeping the Promise: Self Advocates Defining the Meaning of Community Living - a report developed by a partnership between the Autistic Self Advocacy Network (ASAN), Self Advocates Becoming Empowered (SABE), and the National Youth Leadership Network (NYLN) and funded by the federal government's Administration on Developmental Disabilities is intended to provide the Centers for Medicare and Medicaid Services (CMS) with a definition of "community" that captures the most vital elements of community life.
Easter Seals Living with Disabilities Study provides insight into the challenges facing adults with developmental disabilities and parents of adult children with disabilities, as compared to parents of adult children without disabilities. In every measure of comparison, the study shows parents of adult children with disabilities had significantly higher levels of concern for their children than parents of adults without disabilities. (Key Findings of the study)
Long Term Care in the New Health Law, Alliance for Retired Americans, May 07, 2010 - A factsheet on long term care changes in the Patient Protection and affordability Care Act, including the Community First Choice Option, exlenntion of the Money Follows the Person Rebalancing Demonsration Program and the CLASS Act.
Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth Transitioning to Adulthood, a guide designed by the Office of Disability Employment Policy (ODEP), U.S. Department of Labor, through its Youth Technical Assistance Center, to help transition-age youth with significant disabilities as well as their family and friends navigate the complex world of PAS.(pdf) (doc)
Medicaid Home and Community-Based Services Programs: Data Update, December 2011- This report, based on annual data tracking conducted by the Kaiser Commission on Medicaid and the Uninsured and researchers at the University of California, San Francisco over the past ten years, presents a summary of the main trends to emerge from the latest (2008) expenditures and participant data for the three main Medicaid HCBS programs: (1) optional 1915(c) HCBS waivers, (2) the mandatory home health benefit, and (3) the optional state plan personal care services benefit. It also presents 2010 findings on the policies used in these three programs, including eligibility criteria, provider, service and waiting list data, as well as provider reimbursement rates for the home health benefit and the personal care service benefit
Medicare Atypical Antipsychotic Drug Claims for Elderly Nursing Home Residents, This report by the Depeartment of Health and Human Services (HHS) Office of the Inspector General (OIG) uncovers wide spread overuse and misuse of antipsychotic medications in our country's nursing facilities.
Money Follows the Person: A 2011 Survey of Transitions, Services and Costs, Kaiser Commission on Medicaid and the Uninsured, December 2011 - This report finds that 2011 marked a turning point for MFP as more states embrace rebalancing their long-term services and supports delivery systems to a home and community based model. With the help of critical services such as transition coordination, assistive technology, and affordable housing options, many more people will benefit from MFP in the years ahead. However, more attention to direct care workforce and affordable, accessible, integrated housing options will be important to help facilitate successful community transitions. (Case Study: Georgia’s MFP Demonstration | GA Profiles; Case Study: Ohio's MFP Demonstration (HOME Choice) | OH Profiles)
More Nonelderly Americans Face Problems Affording Prescription Drugs, Tracking Report No. 22, Laurie E. Felland, James D. Reschovsky - More children and working-age Americans are going without prescription drugs because of cost concerns, according to a new national study by the Center for Studying Health System Change (HSC). In 2007, one in seven Americans under age 65 reported not filling a prescription in the previous year because they couldn’t afford the medication, up from one in 10 in 2003. Rising prescription drug costs and less generous drug coverage likely contributed to the growth in nonelderly Americans—from 10.3 percent in 2003 to 13.9 percent in 2007—who went without a prescribed medication.
Net Effects of the Affordable Care Act on State Budgets, Commissioned by First Focus and authored by Urban Institute researchers Stan Dorn and Matthew Buettgens, this report assesses how state budgets will fare as a result of the Affordable Care Act. The report’s findings shed new light on potential savings for state Medicaid budgets which, even in a worse-case scenario, would outweigh costs associated with the health reform law.
The Prepared Lifestyle is a free 12-page booklet that provides easy-to-use checklists to guide you in preparing for seasonal and pandemic flu, severe storms, and other emergencies. This publication is produced by the Research and Training Center on Independent Living at the University of Kansas and the Kansas Department of Health and Environment, Bureau of Health Preparedness, with funding from the U.S. Department of Health and Human Services.
Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, September 08, 2011 - This report by AARP’s Public Policy Institute, The Commonwealth Fund and The SCAN Foundation examines four key dimensions of state LTSS system performance: affordability and access; choice of setting and provider; quality of life and quality of care; and support for family caregivers. It assesses each state’s performance as a whole and on 25 individual indicators, some of which were measured for the first time.
State Mental Health Cuts: The National Crisis, March 2011 -this report documents the state-by-state funding changes for public mental health services since 2009 for youth and adults living with serious mental illness. These cuts are likely to worsen in 2011 and 2012. The report also describes how states have chosen to implement these funding cuts. The report concludes with policy recommendations, focused on the steps that should be taken to ensure that valuable public resources are spent wisely and effectively.
State Mental Health Cuts: The Continuing Crisis, November 2011- this report by the National Alliance on Mental Illness (NAMI) examines budgets approved for 2012 by state legislatures to document the nation's deepening mental health crisis. According to the report, Kansas ranked ninth amongst the top 10 states with the greatest proportion of cuts in mental health care from FY2009 to FY2012.
Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective / Research Report March 2009— This AARP Public Policy Institute Insight on the Issues highlights research showing, over time, states that invest in home and community-based services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.
Testimony of Mitch LaPlante, Ph.D., Associate Professor, University of California,
San Francisco before the
Senate Finance Committee Hearing on "Home and Community Based Care: Expanding
Options for Long Term Care" Tuesday Sept 25th, 2007 at 10am, Dirksen Office Building
G-50
10-Plus Years After the Olmstead Ruling, By Eric Carlson and Gene Coffey, National Senior Citizens Law Center, September 2010 - A new report from the National Senior Citizens Law Center, with support from The SCAN Foundation, calls on states to use the implementation of the Affordable Care Act to end Medicaid’s long-standing bias toward funding long-term care in institutional settings such as nursing homes
Valuing the Invaluable: 2011 Update - The Growing Contributions and Costs of Family Caregiving by Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, AARP Public Policy Institute, July 2011 - This report updates national and individual state estimates of the economic value of family caregiving using the most current available data. The report also explains the contributions of family caregivers, details the costs and consequences of providing family care, and provides policy recommendations to better support caregiving families.
Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports, This AARP Public Policy Institute study is the most comprehensive analysis to date on the budget cuts to both Medicaid and non-Medicaid funded long-term services and supports (LTSS) in each state. It also illustrates state-by-state how LTSS are financed. In addition, this study provides a very early snapshot of the likelihood of states pursuing some of the LTSS provisions within the Affordable Care Act (ACA).