Topeka Independent Living Resource Center

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Advocacy Alert: Senate Bill Makes Deeper Cuts to Medicaid!

Reliable sources have reported that the Senate is poised to pass the American Health Care Act (AHCA). They are planning to work the AHCA and pass a bill by June 30th. The Senate bill will include deep cuts to Medicaid, ACA and expansion. There is no time to waste. Our sources have clearly told us that we have until the end of next week (June 23rd) to contact Senators.


KanCare Renewal Public Meetings Scheduled for June

The Kansas Department of Health and Environment (KDHE) has scheduled a series of public meetings for the discussion of the state’s proposed renewal of the KanCare program and to provide input and ideas for changes. Anyone may provide comment and input about the KanCare renewal at any time from June 14, 2017 until October 15, 2017.

Find out when and where Public Meetings will be held

newspaper News of Interest


Deeper Medicaid cuts in Senate bill draw resistance from disabled

As U.S. Senate Republicans were unveiling their Affordable Care Act replacement plan Thursday, Lawrence resident Mike Oxford was lying on the floor of Senate Majority Leader Mitch McConnell’s office. ...

Read the full story on our Federal Issues News page

These are all the people the Senate health care bill will hurt

The actual policies contained in the Better Care Reconciliation Act, the Senate Republican plan introduced on Thursday to repeal and replace Obamacare, would help some Americans a lot. The biggest winners are households making $250,000 a year or more, which would see two different taxes targeting them repealed; households with millions in investment income would come out particularly far ahead.

But vastly more Americans would come out behind. ...

Read the full story on our Federal Issues News page

High percentage of students with learning disabilities drop out of high school, report finds

Roughly 15 percent of Kansas and Missouri children with certain learning disabilities drop out of high school, according to a recent national report. ...

Read the full story on our Education News page

New to the TILRC Website:

Medicaid Cuts in House ACA Repeal Bill Would Limit Availability of Home- and Community-Based Services - This report explains why the House passed American Health Care Act (AHCA) plan to cap and cut federal Medicaid funding would likely jeopardize coverage and care for people who receive Medicaid Home and Community Based Services (HCBS).

Independent Living: Resources and Funding Strategies for Making Homes Accessible - This article from the MoneyGeek website provides an overview of how much some types of renovations cost, tips on where to find help to pay for remodeling projects and expert advice about what types of projects make sense.

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

Work Incentives Seminar Event (WISE) Webinars

Ticket to Work for Young Adults, June 28, 2017, 2-3:30pm CT


Section 508 Best Practices Webinar Series

Revised Section 508 Chapter 4 Hardware (including Mobile), July 25, 2017, 12pm


Accessibility Online Webinars

Accessible Courthouses (A refresher), July 06, 2017; 1:30pm CDT - This session will provide a refresher on requirements in the ADA and ABA Accessibility Standards for courthouses and courtrooms.


ADA Legal Series Webinars

Readily Achievable Barrier Removal Issues - focusing on small to mid-sized businesses, July 26, 2017, 1pm CDT


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Community Feedback on City Access for People with Disabilities Survey - the City of Topeka’s ADA Advisory Council's survey is designed to gauge the public’s perception of accessibility services for those with a disability in Topeka and gather demographical information from those participating in the survey. The survey closes June 30.

Learn Disability Rights Advocacy Letter Writing Skills - The KU Research and Training Center on Independent Living is conducting a training program to assess and develop an advocacy training package to help people with disabilities learn and apply advocacy skills. The training will be held at Independence Inc. and participants will receive $60 per session. Interested parties should contact Alice Zhang by email at alicezhang@ku.edu or by phone at 785-864-4095 as soon as possible.

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

George Washington University Disability and Disasters Study - GWU is conducting research about how adults with physical disabilities think about and prepare for disasters. Email emergencyprepstudy@gmail.com or call (202) 994-1887 for more information!

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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