Topeka Independent Living Resource Center

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Image of an executioner with Medicaid on the chopping block

Community Forum on Proposed Changes to Medicaid by Congress
March 29th from 1PM to 3PM, 408 SW Jackson

Under the proposed American Health Care Act (AHCA), 24 million people would lose their health insurance, and there would be nearly $900 billion in federal cuts to Medicaid. If AHCA passes Home and Community Based Services (HCBS) programs could be at risk.

To learn more about this event or to RSVP, call Evan Korynta at 233-4572.  (Refreshments will be provided)

What You Need to Know: The AHCA and the Threat to Home and Community Based Services!


KDHE Seeks Comments on KanCare Extension

The Kansas Department of Health and Environment (KDHE) is offering the opportunity to attend additional public hearings regarding the state’s proposed one-year extension of the KanCare program, and to provide comments about the extension request application.

Written comments about the KanCare extension request may be sent to this email address: kdhe.kancarerenewal@ks.gov; or may be mailed to: KanCare Renewal, c/o Becky Ross, KDHE-Division of Health Care Finance, 900 SW Jackson, LSOB – 9 th Floor, Topeka, Kansas, 66612.

newspaper News of Interest


Cost Of KanCare Expansion Debated Ahead Of Key Vote

... Sen. Vicki Schmidt, the Topeka Republican who chairs the health committee, has scheduled the expansion bill for a vote Thursday, the same day that the U.S. House of Representatives is expected to vote on a Republican replacement for the Affordable Care Act that among other things would nullify the Kansas bill. ...

Read the full story on our State/Local Issues News page

GOP Health Plan Aims To Curb Medicaid, Expand State Options

... Big revisions were made to the legislation this week to appeal to conservatives pushing to reduce federal Medicaid spending and shift more power to states. Advocates for the program fear those measures, if enacted, could lead to cuts in benefits and fewer enrollees in the state-federal health insurance program for low-income people.

“We could see a complete unwinding of the Medicaid program as we know it today,” said Donna Friedsam, a health policy expert at the University of Wisconsin. ...

Read the full story on our Federal Issues News page

High court rules public schools must do more to educate special-needs kids

... The Individuals with Disabilities Education Act requires public schools to provide students with disabilities a “free appropriate public education” — commonly called the FAPE requirement. But lower courts have split on what that means. Chief Justice John Roberts wrote for the court that a “child’s education program must be appropriately ambitious in light of his circumstances, just as advancement from grade to grade is appropriately ambitious for most children in the regular classroom.”

“The goals may differ, but every child should have the chance to meet challenging objectives. This standard is more demanding than the ‘merely more than de minimis’ test applied by the Tenth Circuit.” ...

Read the full story on our Education News page

New to the TILRC Website:

Independent Living: Resources and Funding Strategies for Making Homes Accessible - This article from the MoneyGeek website provides an overview of how much some types of renovations cost, tips on where to find help to pay for remodeling projects and expert advice about what types of projects make sense.

Deafwebsites.com is a compendium of online information for deaf awareness, deaf culture and deaf resources

Disability Integration Act (S 2427) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

Accessibility Online Webinars

Vehicles Final Rule, April 06, 2017; 1:30pm CT - This session will include a review of updates to the ADA guidelines for buses and vans and an overview of current research that will inform future rulemakings regarding circulation within a vehicle by people with mobility disabilities and other issues affecting accessibility to transportation vehicles..


ADA Audio Webinar Series

Looking at Institutional and Community Living Through Data- An ADA Participatory Action Research Consortium (ADA-PARC) Report, April 19, 2017, 1pm- Learn about Structured Negotiation - an alternative to lawsuits with a two decade track record in successfully resolving disability rights cases. 


Work Incentives Seminar Event (WISE) Webinars

Ticket to Work: Working with a Federal Contractor, April 26, 2017, 2-3:30pm CT


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Wireless Rehabilitation Engineering Research Center (RERC) Survey of User Needs (SUN) for Wireless Technology - The purpose of the SUN is to learn about how people with disabilities use this technology and why some people with disabilities don't use these products. This information is used to let designers know the needs of people of all ages and with all types of abilities, in order of make wireless products easier to use.

George Washington University Disability and Disasters Study - GWU is conducting research about how adults with physical disabilities think about and prepare for disasters. Email emergencyprepstudy@gmail.com or call (202) 994-1887 for more information!

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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