Topeka Independent Living Resource Center

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newspaper News of Interest


The Jerry Lewis Telethon Could Have Had a Happy Ending

... When the comedian died August 20, my name appeared in the Associated Press obituary because I was among the disabled people who protested his annual Labor Day telethon for the Muscular Dystrophy Association. ...

... But as Lewis is praised for the money he raised, it’s important to remember that the anger he generated among many disabled people is just as much of a part of his legacy. ...

Read the full story on our Health/Long-term Services News page

Senate panel to begin bipartisan hearings on stabilizing health insurance market

... “Eighteen million Americans, including 350,000 Tennesseans – songwriters, farmers, and the self-employed – do not get their health insurance from the government or on the job, which means they must buy insurance in the individual market,” said Sen. Lamar Alexander, the Tennessee Republican who chairs the Senate Health, Education, Labor and Pensions Committee.

“My goal by the end of September is to give them peace of mind that they will be able to buy insurance at a reasonable price for the year 2018,” Alexander said. ...

Read the full story on our Federal Issues News page

Often Missing In The Health Care Debate: Women’s Voices

... Not only do many depend on insurance coverage for maternity care and contraception, they are struck more often by such diseases as autoimmune conditions, osteoporosis, breast cancer and depression. They are more likely to be poor and depend on Medicaid — and to live longer and depend on Medicare. And it commonly falls to them to plan health care and coverage for the whole family. ...

... To get a richer sense of women’s viewpoints on health care as the national debate continues, we asked several around the country and across generations to share their thoughts and personal experiences. ...

Read the full story on our Health/Long-term Services News page

New to the TILRC Website:

Medicaid Cuts in House ACA Repeal Bill Would Limit Availability of Home- and Community-Based Services - This report explains why the House passed American Health Care Act (AHCA) plan to cap and cut federal Medicaid funding would likely jeopardize coverage and care for people who receive Medicaid Home and Community Based Services (HCBS).

Independent Living: Resources and Funding Strategies for Making Homes Accessible - This article from the MoneyGeek website provides an overview of how much some types of renovations cost, tips on where to find help to pay for remodeling projects and expert advice about what types of projects make sense.

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

Work Incentives Seminar Event (WISE) Webinars

Ticket to Work and Work Incentives Part 1: Supplemental Security Income (SSI), August 23, 2017, 2-3:30pm CT


Accessibility Online Webinars

Open Q & A, September 07, 2017; 1:30pm CDT - This session will provide an opportunity to ask questions on any topic related to the Access Board's work and activities.


ADA Audio Webinar Series

Facebook Friends-Workplace Enemies, September 19, 2017 - Are people with disabilities being "weeded out" by potential employers because of their "electric footprints"? In this lively session EEOC's Joe Bontke will spell out the risks and offer some remedy for the new risk of social network "investigating" when an applicant has some "google issues".


ADA Legal Series Webinars

Reasonable Accommodation Update, September 20, 2017, 1pm CDT


Section 508 Best Practices Webinar Series

Revised Section 508 Chapter 5 Software (including Mobile), September 26, 2017, 12pm


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Research Participants being recruited by KU for a study on participation in volunteer activities by people with mobility-limiting impairments. For more information contact Alicia Sellon at aliciasellon@ku.edu, 785-864-4778.

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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