Topeka Independent Living Resource Center

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ALERT! ALERT! ALERT!

Proposed KDADS policy changes to the Home & Community Based Services (HCBS) Progams could have a profound impact on your lives! Including:

A cap on all personal care services at a maximum of 12 hours per day!

A doctor's certification you “demonstrate progress throughout the stay in the program” to maintain TBI Waiver eligibility!

Temporary Care would only be available in an institution. If you need extra support for longer than 61 – 89 days, you might lose your HCBS and most likely be forced into an institution.

The proposed policies that need your comments and input can be found at: http://tinyurl.com/ntpfdau. Act quickly! These proposed policy changes are only open for comment until the end of the month!


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National Immunization Awareness Month logo

Information on National Immunization Awareness Month

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newspaper News of Interest


The Eleanor Smith Inclusive Home Design Act is Introduced

Eleanor Smith’ 30-plus years of advocacy for Visitability in new homes is paying off as Rep. Jan Schakowsky (D-Ill.) introduced the Eleanor Smith Inclusive Home Design Act on July 28. Per Visitability guidelines, the bill would require every new home financed or funded by the federal government to include a zero-step entrance, wheelchair accessible doorways and an accessible bathroom on the home’s main level. ...

Read the full story on our Housing News page

EEOC takes aim at Target for discriminatory pre-employment tests

... Why the concern? First, the use of pre-employment tests and background checks by employers has increased. Second, even facially neutral pre-employment tests may have an adverse impact on employees with protected characteristics. Third, many employers who rely upon those tests fail to make and keep required records that will disclose the impact of assessments on employees in protected categories. ...

Read the full story on our Civil Rights News page

Has The ADA Broken Its Economic Promises To People With Disabilities?

... That was 31 years ago, six years before Congress passed the Americans with Disabilities Act. The ADA was a landmark piece of legislation that banned employers from discriminating based on disability and mandated access to government services as well as public facilities like buildings and transportation. This year is its 25th anniversary, and advocates are taking stock of whether the ADA has achieved its goals of equal opportunity and access. What it doesn’t seem to have done: improve employment and overall economic conditions for disabled Americans. ...

Read the full story on our Employment News page

New to the TILRC Website:

Prevalence of Disability and Disability Type Among Adults - United States, 2013; This report by the CDC presents the percentage of adults with any disability and with specific types of disabilities by state and key demographic characteristics (e.g., sex, age, race/ethnicity).

The Case for Inclusion 2015 - Since 2006, United Cerebral Palsy (UCP) has produced this annual, state-by-state ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities (ID/DD). The Case for Inclusion ranks all 50 states and the District of Columbia (D.C.) - not on their spending, but on their outcomes for Americans with ID/DD.

Frequently Asked Questions about Service Animals and the ADA - This FAQ from the U.S. Department of Justice clarifies 2010 revided requirements for service animals. It includes 37 questions and answers covering everything from what type of work a service animal might perform to how they are trained and what sort of animals qualify.


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

AccessibilityOnline Webinar Series

Open Q & A, September 03, 2015, 12:30-2pm CST, This regular session in the webinar series provides an opportunity to ask questions on any topic related to the US Access Board's activities. Session participants are requested to submit questions in advance on the 2010 ADA Accessibility Standard, the Architectural Barriers Act Accessibility Standard, Medical Diagnostic Equipment or other Board rulemakings or activities.


Rehabilitation Research and Training Center on Employment of Individuals with Physical Disabilities (VCU-RRTC) Webinars

Customized Employment for Transition-Age Youth with Physical Disabilities, September 10, 2015, 1pm CT


ADA Audio Conference Series

Reporting Clearly and Accurately about Disability, September 15, 2015, 1-2:30pm CT


ADA Legal Webinar Series

Effective Communication and the ADA, September 16, 2015, 1-2:30pm CT


National Business & Disability Council Webinar

Resolving Conflicts Where They Start: Creating Safe Work Environments for Employees With Disabilities, September 17, 2015, 1-2pm CT


PEAT Talks Webinars

Policy Driven Adoption for Accessibility, September 17, 2015, 1-1:30pm CT - Join a consortium of state accessibility CIOs for a discussion about Policy-Driven Adoption for Accessibility (PDAA). This new approach can help achieve higher levels of accessibility in vendor-provided products and services over the long term.


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

Wireless Rehabilitation Engineering Research Center (RERC) Survey of User Needs (SUN) for Wireless Technology - The purpose of the SUN is to learn about how people with disabilities use this technology and why some people with disabilities don't use these products. This information is used to let designers know the needs of people of all ages and with all types of abilities, in order of make wireless products easier to use.

George Washington University Disability and Disasters Study - GWU is conducting research about how adults with physical disabilities think about and prepare for disasters. Email emergencyprepstudy@gmail.com or call (202) 994-1887 for more information!

Kessler National Employment Survey - The Kessler Foundation, in partnership with the University of New Hampshire is conducting a national survey focusing on employment issues for working age adults with disabilities in order to understand the mechanisms by which individuals with disabilities strive to work and the challenges they face in doing so. The survey is open to individuals or family members of individuals who are employed or seeking employment.

Survey on Pregnancy among Women with Physical Disabilities - UMass Medical School is conducting this online survey to learn about the health care experiences of mothers with physical or mobility disabilities before, during, and after pregnancy. This survey is part of a research study.

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Survey of Cognitive Disability and Technology - The Rehabilitation Engineering Research Center for Cognitive Rehabilitation (RERC-ACT) and its partner Beneficial Designs are conducting a survey to gather stakeholder feedback on what makes technology difficult or easy for people with cognitive disabilities to use. People with expertise in cognitive disabilities, including caretaking or research, may take the survey online. Individuals with cognitive disabilities are invited to schedule a structured telephone interview about their technology use and opinions by contacting Seanna Kringen at 831/685-4798 or seanna@beneficialdesigns.com.

New Mobility Airline Accessibility Survey - We’ve seen the stories about wheelchair users being mistreated by TSA agents or forced to crawl across the tarmac. Is this typical, or are these incidents few and far between? Are some airlines better than others for wheelchair users? And how often is equipment damaged or destroyed by airlines? Please take our short survey so that together we can explore the state of air travel for wheelchair users today — and how it can be improved.

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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