Topeka Independent Living Resource Center

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newspaper News of Interest


Trump healthcare order could face strong legal objections

U.S. President Donald Trump’s expected plan to let Americans buy insurance across state lines could violate federal law governing employee benefit plans and will almost certainly be challenged in court, several legal experts said. ...

Read the full story on our Federal Issues Services News page

Do Pharma’s Claims On Drug Prices Pass The Smell Test? We Found 5 Stinkers.

Drug companies launched an ad and publicity extravaganza this year right after President-elect Donald Trump said they “are getting away with murder” on sky-high pill prices. ...

... But the narrative from the Pharmaceutical Research and Manufacturers of America (PhRMA), a trade group, is only the rosiest, most self-serving version of the tale, say critics, and numerous independent authorities question its assertions.

They say the campaign is misleading in these five ways: ...

Read the full story on our Health/Long-term Services Services News page

Kansas Launches Final Phase Of Troubled Enrollment System

... The overhaul of the Kansas computer system for processing welfare and Medicaid applications recently went through its final implementation phase. State officials say the process went smoothly, especially compared to the system’s initial rollout that delayed thousands of Medicaid applications.

Read the full story on our State/Local Issues News page

New to the TILRC Website:

Right to Emotional Support Animals in "No Pet" Housing - This factsheet by the Bazelon Center for Mental Health Law explains a renter with a disability's right to an emmotional support animal and information to help in requestioning a rasonable accommodation.

Myths and Truths About the “ADA Education and Reform Act” (H.R. 620) - The so-called ADA Education and Reform Act of 2017 is not what its proponents claim and will not achieve its stated goals. Instead, this bill undermines the very purpose of the landmark civil rights law, the Americans with Disabilities Act (ADA), and harms people with disabilities. This fact sheet addresses and dispels the myths and misinformation about H.R. 620.

Disability Integration Act (S 910) - This ground-breaking legislation will finally, truly support full implementation and compliance with the U.S. Supreme Court’s ADA, Olmstead requirements that mandate effective home and community service and support alternatives to nursing facilities and other institutions. DIA requires both public and private providers of long term care to provide a home and community alternative to any institutional benefit. (DIA Summary)


LET US HELP YOU ACHIEVE YOUR INDEPENDENT LIVING GOALS!

If you are a TILRC consumer you may already know how we help people who want to transition from an institution, like a nursing facility, back into the community or how we help folks get the attendant care services they need through the Medicaid Home and Community Based Waiver Programs, but you may not be aware of all the other ways we help people with disabilities maintain or increase their independence. Learn more about how our advocates can help you be more independent in many aspects of daily living.


Job Openings

ONLINE LEARNING OPPORTUNITIES

Disability and Aging Collaborative Webinar

Trends in 1115 Waivers Impacting Seniors and People with Disabilities, October 13, 2017, 1 -2:15pm CDT - This webinar will explore the basics of 1115 demonstrations, discuss how recent proposals could impact older adults and people with disabilities, and present tactics advocates can use to track and weigh in on new proposals.


ADA Audio Webinar Series

Parsley or Cilantro? Making Sure Your ADA Self Evaluation and Transition Plan are Seasoned with the Right Ingredients, October 17, 2017


Work Incentives Seminar Event (WISE) Webinars

Achieving Financial Independence with Ticket to Work and an ABLE Account, October 25, 2017, 2-3:30pm CT


Accessibility Online Webinars

Harmonization between the ADA Standards and the IBC/ANSI A117.1, November 02, 2017; 1:30pm CDT


Section 508 Best Practices Webinar Series

W3C WCAG 2.0 Resources, November 28, 2017, 12pm - This session will review the robust technical assistance supporting the use of the WCAG 2.0 Success Criteria provided by the W3C (World Wide Web) Web Accessibility Initiative.


POLICYMAKERS/RESEARCHERS NEED YOUR INPUT:

RTC: Rural is conducting interviews for a study on how young adults with disabilities participate in social and community events in rural areas. Participants must be 18 to 34 years old, be in or from a town of less than 10,000 inhabitants, and have had an IEP in high school and/or a current disability. Participation involves a 1 to 2 hour interview and participants will be compensated for their time. For more information, contact Rayna Sage, PhD, at 406/243-5233 or rayna.sage@umontana.edu.

Research Participants being recruited by KU for a study on participation in volunteer activities by people with mobility-limiting impairments. For more information contact Alicia Sellon at aliciasellon@ku.edu, 785-864-4778.

Paralyzed Veterans of America (PVA) launched AirAccess30.org to collect stories from PVA members and the disability community about their air travel experiences. PVA is working with the broader disability community to bring attention to the successes and failures in air travel for passengers with disabilities. Please share your stories on the site and on social media with the hashtag #ACAA30.

Transportation Access and Experiences Survey -This survey which is designed to improve understanding of accessibility of public transportation for people with disabilities. Responses to the survey will be used to make improvements at regional and national levels.

Crutch User Survey - Researchers at the University of South Florida (USF) are looking into ways to improve walking assistance provided by walking crutches in a grant from the National Science Foundation. To help better guide this research and make future crutches more effective and usable, they are asking crutch users for their help in completing a short survey about crutch use.

United Spinal Association Medicare Beneficiary Wheelchair Repair Survey - This survey is being done to gather information on the ability of Medicare beneficiaries to get timely repairs to their wheelchairs. The results will be shared with Medicare officials and policymakers

Wireless RERC Survey on Emergency Communications & People with Disabilities - This survey by the Wireless Rehabilitation Engineering Research Center asks you to share some information about yourself, your experiences, and your preferences for communicating in emergencies. Your answers will be used to improve accessibility of emergency communications for people of all ages and abilities.

ITEM Coalition Survey on Access to Assistive Devices Under Medicare - The Independence Through Enhancement of Medicare and Medicaid (ITEM) Coalition is surveying Medicare beneficiaries with disabilities and chronic conditions to assess their experience accessing the devices they need to function independently in everyday life. ITEM is interested in getting feedback from individuals who access medical device and assistive technology in areas where Medicare has implemented a selective provider contracting program known as the DME Competitive Bidding Program, and comparing that feedback to individuals who use devices outside of those areas.

SABE Self Determination Survey - Tell SABE if your local or statewide self advocacy organization's activities help its members to be more self-determined.

SPREAD THE WORD TO END THE WORD! - Help eliminate the use of the R-word in everyday speech.

ACTIVITY CODES FOR PERSONAL ASSISTANT SERVICES (T1019) IN THE MR/DD WAIVER AND PERSONAL SERVICES (S5126) IN THE PD AND TBI WAIVERS, (PDF Format) (Word Format)


ACTIVITY CODES FOR ATTENDANT CARE SERVICES LEVEL I, LEVEL II, AND SELF-DIRECTED IN THE FRAIL ELDERLY WAIVER, (PDF Format) (Word Format)

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